Hi, she is calling me back, its a lot to take in and im struggling with remembering it all. Im in so much pain in my legs as a side effect of the steroids they tell me. I can not concentraite. Have taken all the painkillers i can and currently sobbing in pain. In less than a week my life has turned upside down and i just can not cope very well at the moment. Sorry to be so soft i just dont know where else to ask. Today is not a good day.
I’m glad she’s calling you back…I’m just worried about you. I’m not surprised you can’t concentrate, with everything that’s happening. Your not being soft, please don’t think that. Lots of ((((((hugs)))))) Noreen
Sorry, i carnt imagine how you guys do this, horrendous!
Stop saying sorry lol 
Your having a rough time at the moment. Everything as changed for you so quickly…it’s quite a shock for you. xx
Hello Tonhi
I’ve only just noticed your message…sometimes when your new to the forum, messages can be a bit slow to show.
It seems you and helnbel are going through a bit of a rough spot at the moment…to put it mildly.
Your both at the begining of journies…a diagnosis of any kind can sometimes take a while.
There are lots of lovely people on here, who will be happy to offer you both support. I’m sorry you don’t have a lot of friends or family at the moment, who an offer you support.
It must be a scary time for you. Your only 28 and two small children. I hope get answers soon rather than later.
Just keep coming on here, both of you. The everyday living link is very good for sharing every day life as well…you may even get a few laughs…when your ready
Take care
xx
Hi Helnbel & Tonih
Sorry you are both having such a difficult time but as Blossom says, there are loads of people here who will support you so feel free to post (rant!) away.
When I first came on here I too was very frightened of where everything was leading. I read the phrase " emotional rollercoaster" & it certainly is. Good days, bad days, scary days - & nights…& then some days you just feel you’re living in a parallel universe - or maybe (you think)you imagined things all along …???
I’ve read alot now & this is apparently the reality of limboland. Nobody wants or would choose to feel like this but this is what we have to deal with for now…Diagnosis takes a long time as the medics want a certain number of boxes ticked in a certain way. All you can do is ask for the help & pain relief you need & listen to your body -rest if you need to etc ( though I know this is hard with little ones.) I’ve found I’ve felt & coped better since I’ve started to be less hard on myself too.
Good luck to both of you
Love & hugs,
C xx
Thank you for your continued support. I think i will have to call someone sooner as the pain in my lower back legs hips knees is awful. Despite tramadol and paracetamol and neurofen and 3 baths, any advice on managing the pain would be appreciated. I was told it was the steroids, methylpredisolone @ 5x100mg a day. 5 days, is this normal? I am not sleeping either another side effect. Which leaves more time to think, i have 3 children 1 of which is dissabled, this scares me more than anything how can i look after them, i know diagnosis can take a long time as 5 years on with my child wenstill dont have a full diagnosis. Life really can suck.
Tonih, dont feel bad, i think we need all the help we can get and i have only told my husband and my brother. This is going to be a long and scary journey for us and i am so pleased i have found this place. Ms was not on my list of what could be wrong i thought migraine or neuralgia, i feel like talking to a stranger especially one who has been through this is really of value to me, and also easier than seeing the face of those who love us so worried, lets hope we can stay strong together.
Xx
Hello helnbel
If the pain is really bad, perhaps you should ring your gp in the morning.
Loss of sleep is one of the first things to go when your worried…plus the pain your in.
My diagnosis was quite quick, so hopefully whatever is wrong with you will be sorted out quickly.
Three children and one disabled, that must be quite a struggle at the moment. My diagnosis was last year and I’m 58…both mine are adults…I see that as a positive.
Its amazing how we think we won’t cope with crisis/illness in life but most of us do find a way. Take it one day at a time, that’s my way of coping.
xx
Hi thank you all for your very kind words how nice it was to hear " you can be worried and you can be angry " not " ahh youl be fine " I think it was more of a shock because I do not have any serious symptoms and I’m not in any pain (just occasional discomfort with headaches and dizziness) this came on from the result of a simple eye pain ( that has since gone ) and Told the results of my MRI suggest I should be experiencing some more advanced symptoms . Im not in the slightest suggesting anyone is more worthy then any one else of empathy (please don’t think I am ) but I am struggling because being told I have ms has left me so scared and worried and yet the fact I have no serious symptoms (so far) has left me feeling like I have no rite to be here complaining to people who are suffering in various ways . Just feeling like life is so so cruel I’m not in pain but I’m so scared for mine and my families futures x Ps thank you all and helnbel , pure angels xx