I’ve only been diagnosed for 3 months, but have had 3 relapses in as much time: Optic Neuritis, left flank burning and now right side numbness, especially in the arm which resembles carpal tunnel in the wrist.
I’ve today received my PIP assessment evaluation - I apparently scored 4 points on daily and 8 points mobility, so suppose I have to appeal now…
Amazed that they can say I’m fine to care for myself but I “can walk more than 20m but no more than 50m”
It’s a terrible system and really pushes people into a lot of hardship
Anyway, my arm was getting a little better, but I picked up a cold over the weekend and it got worse 10 fold. I spent all of Sunday and yesterday sleeping - like 20 hours out of 24. Fever/cold sweats. It was pretty awful. But today I’m far improved. Still not up and about but I made some soup and I can stay awake!
I knew that infections made relapses worse, but i didn’t think MS made infections worse. Or maybe it was just a bad cold? Seems to hit me hard but have a more limited duration.
I will get around to the PIP appeal next week, but want to focus my head first to make sure I don’t mess it up.
I start tecfidera next week. Meeting my MS nurse for the first time on Thursday.