Hi, I am new to this forum, my name is Sarah, I was diagnosed with Fibromyalgia back in December 2015, and was told I had most likely been suffering from it for the past 22 yrs, which is how long I had been suffering with chronic pain through out my body, but mainly in my legs and back, with my flare ups gradually moving all over my body.
Recently I had a very bad flare up that affected my eyes, which I had never had before and I was told it was very unusual, initially I was getting no joy with my GP’s and so altered my pain meds the best I could myself. I also booked myslef in at the opticians whilst I was waiting to see my GP, whilst waiting for these appointments to come round my flare up got gradually worse as the days went on, they were flickering and twitching all the tim I was getting double vision, blurred vision, and at two points my right eye closed for several hours and wouldnt open, for someone who has never had any eye problems this was very very scary.
I eventually saw the optician on Friday who spent 40 minutes testing my eyes, which ended with me having a blinding headache and my eyes felt like they were burning. He told me that the flare up had damaged the muscles around my eyes and that it had actually moved the eyes axsis and so I would need glasses with prism 50% tinted lenses permanently. I took this report back to my GP and told him everything and explained the loss of ues of my right eye for several hours on two different days and the fact that the flare up seemed to be getting worse not better.
After doing many more tests, he said he was going to book me in with an eye specialist, and also get me into see a nuerologist and rhumatologist urgently as he believes I have MS as well as my fibromyalgia and that this is why my flare up are so aggressive and why my disabilities are getting so much worse so quickly.
Could anyone advise me as to whether what my GP said could be true please?
As you can imagine myself and my family are worried sick as to what the next step will be for me, I am already having to use my wheelchair alot more than I like, and I know that my memory isn’t as good as it used to be even though I am only 35.
Any advise please