Hi , I’m 44, I’ve been really ill. I have been diagnosed with FM, although my symptoms have FM , I’m more like MS, in fact nearly all my symptoms point to MS , I don’t know anything much About MS. Only the symptoms I don’t know anyone that has MS, but do know people with FM. I’m due to see a endocrinologist in March and a neurologist in March .
Was diagnosed by a rheumatologist in January. I have so many symptoms of Ms. Really would like to speak with people find out if they are like me. As I feel so confused and MS is so scary I want to know so desperately because at least I may be able to get help. The scariest things have happened to me but don’t know of these symptoms happening to people with FM.
I have been watching the blogs on my FM site to see if people experience the symptoms I have , I haven’t come across any yet. I’m getting desperate the two specialists I’ve spoken to have given me all but ten minuets each of their time. I’ve had little conversation and I don’t know how to go on.
My doctor hasn’t given me anything for FM. I’m on beaterblockers but that’s only be use of a extreme eposode I was taken to hospital for. I don’t actually know many people on beaterblockers for FM. I know this sounds crazy but I actually feel ok at the moment.
People with FM feel ill pretty much most of the time. So what’s wrong with me. I was unbelievably ill, doctor thinks I’ve got epilepsy. I had extreme upper pain couldn’t speak burning sensations peeing myself couldn’t move, loss of limb control extreme fatigue blurred vision I have eye problems. Legs don’t feel like my own somedays but nothing to what I have had, my legs just give way when I’m walking down the street then just feel disconnected like there false legs lol.
Burning sensations on my right calf. The worst thing was this crushing pain in my chest my hole posture changed and I was hunched over and my chest felt like it was caving in. I had air hunger and I looked pretty terrible I lost a stone in three weeks.i had convulsive shaking I looked like I had an epileptic fit. Before this came on I had a vibrating feeling inside me, like a mobile phone going off inside me on buzz.
This went on for months then I started forgetting things this like I say all happened over months before this seizure like eposode it’s been nearly two months and I feel like I’m recovering . Oh I wish I could get answers I’m so worried that the specialists will miss something and have wrongly diagnosed me. Pleeese help x