Thank you for your reply Crazy Chick and your positivity. It means more than you know. It’s so scary - I think I’m more scared because I know that my eyesight is something I would not be able to live without and I really want my wife to be ok.
She has seen minor improvements and has gone back to work on a phased return to gently get her eyes back to it. On Friday - she was struggling, but today - it was ok. Mad that a weekend can make such a difference. I really pray she keeps improving every day and I again thank you for your kind words and positivity.
Hi everybody I’m new to the group. I’m on my third episode of optical neutrtis since May. I lost vision in my left eye for six weeks and had steriodd orally. VEP showed signs of possible demylanation and server delay in signals from eye to brain. They said possible MS but as only one episode could be anything… It came back the week before Christmas and steroids again. And started again thus week. Back on the steroids. I had MRI with contrast of brain and orbit on Wednesday so will see neurologist on 15th Feb for results. I also have severe Hemiplegic Migraine and have stroke like symptoms daily with this so it’s hard to tell what other things are happening. But pretty sure I now have problem with my left leg, numbnes, puns and needles in my feet Spasm in my right hand. More fatigued etc
Welcome to the forum. None of us would choose to belong, but now you’re here, pull up a chair, get comfy and settle in. There are several members who, having had MS for years, try and help out new people in the scary and unpredictable world of MS. I’m one of them.
ON is quite often a first symptom of MS, so it’s not surprising the doctors said ‘possible MS’.
When you have your next appointment, together with the results from the recent MRI, you’ll get more feedback. Either the MRI will show several lesions, including showing old and new (no I have no idea how they can tell old from new either), leading to a diagnosis of MS, or the MRI will rule MS out. Maybe only for now, the ‘watch and wait’ option, or completely.
The steroids you are taking now for the latest ON, should help the motor symptoms too, the leg trouble, pins & needles, spasms and fatigue.
Steroids are pretty wonderful things, if they work. The problem with them (apart from side effects when taking them) is that they aren’t always reliable. Their aim is to bring the relapse to an early end, but they don’t always deliver the intended aim. Hopefully this time they’ll work for you.
Keep talking to us, sometimes it’s a good idea to start a whole new topic (start a New Thread) so it’s completely relevant to you. But let us know what happens anyway.
Thank you Sue , wasn’t sure about starting a new topic. As other forums I’m on for other things. Can be funny about too many threads for the same thing… I had a MRI in June which was clear… so let’s see what this one shows…