I got diagnosed with RRMS in May 2021, It is now July and I am 29 years old.
I am due to start Ocrevus in 4 days time but I am so worried and so scared. I do have the Herpes Simplex Virus and my Neurologist and MS nurse have both said I am more at risk of developing Meningoencephalitis which has put the fear of god into me as I believe there is a high chance of that been fatal.
My Neourologist said I have a lot of active lesions on my brain and that’s why he wants me to have this DMT, He said the Tecfedera tablets probably wont be strong enough and the other infusion Tysabri isn’t ideal for me as I hate needles and he said if I tests positive for the JC virus then I would need to go on Ocrevus anyway.
I just don’t know what to do as if I have this infusion then I want to know how much more risk I am at of having a serious side effect like a brain infection etc.
I don’t want to risk my MS getting worse when I am a 29 year old female but I also don’t want to risk something so serious that I may not recover from.
I am so scared and worried, I just don’t know what to do.
Thank you in advance,