Hi all, Last time I was on here I was telling you all about my visit to a very rude Neuro who seemed peed off because id arrived a month earlier than expected, not my choice, my GPs frequest, but neuro had no note of this request and went on to discharged me after saying in november 5 months earlier saying he would do more MRI scans in 6 months and keep an eye on me???
Anyway, the notes from the November clinic have been impossible to obtain, since xmas last year i have rang the neuros secretary on 8 occasions and on each occassion been told they would send a copy to me and the GP. I then got my GPs surgery on the case who have rang and sent faxs on numerous occassions to be told exactly the same thing, they were even told that they had faxed it to the surgery several times, obviously not otherwise we wouldnt be ringing! i got so annoyed that i rang yesterday and said this is getting beyond a joke and i will be making a formal complaint to the medical board if i dont receive these clinic notes by 5pm yesterday!!! at 4.30 i received a fax from them with the illusive notes, wow! it only took 9 months!!!
After reading the notes i had a sense of releif that I wasnt going mad and i did hear him say he was 95% sure i had MS and then to completely contradict everything he said 5 months later and say he doesnt think its MS and to ignore the brain scans at this time and he didnt want to see me unless i lost my vision or the use of either arms or legs!!!
On these clinic notes it says “that he looked at the MRI from recently with gadolinium. it showed a few small periventricular lesions in her brain which are in keeping with MS but doesnt look as if they were active. There were no black holes or brain atrophy. There was oligoclonal band igG pattern present in the CSF and the serum”. (can anyone shed some light on what all this means please)
He then went on to say " I had a chat with this lady and told her that she probably suffer from MS and that it is stable and not active at present. I also told her that she would not be a candidate for DMT at the moment but we will keep an eye on her and if she has any further relapses with MRI eveidence then i would consider putting her on DMT"
But 5 month after this he discharged me with no further investigations.(i feel he thought id asked to be seen earlier and that i was being over paranoid about symptoms and he was peed off) I feel really angry and confused. im still suffering with dizzy spells, balance problems and pins and needles especially on my face. Anybody have any suggestion as to what i should do next? sorry for the long post but wanted to give you all a clear a picture as possible! x