Evening all well today got my results of mri
which was all clear and was diagnosed with functional neurological disorder apparently they mimic ms symptoms…
im still have muscle twitches, pain and spasms but hey ho at least I have a diagnosis of something
thanks for all the support over the past 12 weeks
Joanne x
Hi Joanne
How do you feel about the diagnosis? I’m not really sure what the actual difference there is experientially between MS and FND. It seems to me that your actual symptoms are similar to what many of us experience on a daily basis.
I assume there are also support websites / similar forums to this one. But if not, you can always come back to us for sympathy even if the reason for your symptoms and any treatment offered is different.
Hopefully in the case of FND there’s some light at the end of the tunnel and you may be looking towards a future without neurological problems.
Sue
Thanks sue yep symptoms mirror ms I have to say I’m not entirely sure about the diagnosis … My mum has ms and was not diagnosed after a MRI but after a lumbar puncture (her MRI was clear) she was also diagnosed with a neurological disorder three years previous to her diagnosis so now I’m unsure!!
Joanne
Hi Joanne
It sounds to me like you should maybe keep an open mind. Perhaps start a diary of symptoms. If you’ve not had a lumbar puncture, maybe you could request one? Many people are given one diagnosis which is then altered, either to or from MS. If in fact it’s not FND but MS, then the faster you get a DMD the better. Perhaps the neurologist is unaware that your mother had a clear MRI but a positive LP?
Or if you can clearly isolate two separate times of symptoms (ie relapses) together with remission, then you should definitely query your diagnosis. Or if you start to get FND treated and find there is no improvement of symptoms. Either of these scenarios could be backed up with a diary of day to say symptoms.
Sue