Hi. I’m new to the MS Society and forum. I thought I had a confirmed diagnosis after my MRI tests (Two of them, head, neck and spine showed several lesions). The initial assessment based on my MRI results and ongoing symptoms found that I had MS. I was told that I might need to have a lumbar puncture but decided against it as I am a single mum with no one to look after my daughter. I would not be able to lie down for 24 hours after. Because of this my neurologist wrote to me and said that he could not make a confirmed diagnosis. I feel as though I’ve been dropped like a hot potato. I may as well have been declared fit and healthy despite the fact I am not and suffer symptoms every day.
I am now really struggling, particularly as a single parent. I have no support, no medication, no advise. I feel pretty roughly treated to be honest. Really shocked…
I’ve made an appointment with my GP to see if I can request a different neurologist who is more sympathetic to my situation. I don’t know if this is possible. Or whether a diagnosis could be made, confirmation or even recognition that I have some neurological problem?
Any advise appreciated. Thank you.