Hello everyone. Im a newbie. I was diagnosed in March with the Relapsing Remitting type. I went blind in the left eye suddenly in August 2012 and ON was diagnosed but no steroids given for a month. The neuro at the hospital got to hear of my case and suddenly I was on steroids for five days. Not sure if they did anything as I wonder if it was too late anyway the sight has come back 80% over time then last autumn I started to have pins and needles/buzzing down both arms when I put my head forward. First I thought it was just a trapped nerve as I had started doing some different exercise but in January after a stressful visit with my aged mother I went to the gym and went on the running machine. Next thing I knew about it I was in hospital diagnosed with Transient Global Amnesia where you lose all memory of time. Mine lasted about 5 hours but whilst in A+E I mentioned the pins and needles thing and the doc said it was probably Lhermitts and to see a neuro. Did that and after first MRI it was inconclusive, then another MRI showed some ‘activity’ in my neck, then a third MRI with some fluid put in, there it was. My little lesion with long swelling over 5 vertabrae. So then I was told its MS but could be Devics desease but thankfully that came back clear so its ‘only’ Multiple Sclerosis. Never thought I would say those words !
Sorry for rambling but there is something very therapeutic about putting all this down. Im scared and worried about the future and have some questions.
Does LHermitts ever go away?
I have weird sensations in my head. It happens every day and has continued for about a month. I suddenly go deaf in one ear, then the hearing comes back, then I go deaf in the other ear and that comes back and whilst all this is going on I feel like a strange wave sensation going through my brain. Its like my skull is moving then that stops. And thats it until the next time. Anyone had the same?