I’m new to the forum, and my first post. Background as follows…aged in my mid 70s, diagnosed in 1982’ never told but my late wife was informed, and advised not to tell me. Informed by embarrassed GP four years later …”you have MS, go away and read up about it”. That set a pattern of researching for myself for information, and Nadia, at the time at MS Society allayed the fears of a frightened tearful man…thank you for ever for your help.
Now in 2019, some 37 years later, I have the Neurologist telling me that he suspects I haven’t got MS after all. Scan results, whatever they tell and I have not a clue as to what, direct me to Endocrinology in August. I have all the classic symptoms, weakness and dizziness, vision problems, numbness, dreadful brain fog, and extreme fatigue, bad days, and slightly better days. Retired in my mid 40s, with wife, two little boys and a mortgage.
Kept myself busy with craft fair woodwork toys for some years, allowing me to buy better tools, and just today given up my old motorcycle, not that I used it much…just nice to see it around as a family friend. Tried it yesterday for the MOT, and no more riding for me. At least it passed, unlike me if I had such a test!,!
Has anyone had a different diagnosis, or prospective investigation after that number of years, and found they have been misdiagnosed in the first place?