Sounds as if your nurse is the one confused! Or that your hearing is not as good as it once was! Do those with Secondary Progressive MS progress onto Tertiary MS in time?
Thanks to all, and I’ve always been aware that PPMS isn’t connected too SPMS, and my hearing is a 100%, I just needed to make sure things hadn’t changed.
I even pointed out, when she said it, that SPMS isn’t connected to PPMS, and she went on to ask me when my last relapse was! to which I answered “I don’t get relapses because I have PPMS,” and she said I may be in remission!
It’s bad enough living with MS, now I have a specialist that has no idea about the condition. What on earth has the NHS become, and what do I do? She must be giving newly diagnosed people this kind of wrong advise, which is very concerning.
I had a Zoom meeting with this nurse a year ago during lock down, which was also strange, so shes had at least a year to spread this misinformation to other sufferers…