Hello
I’m new to the forum so hoping I’m getting this right. I really have no one I can talk to who really understands MS so here I am.
I hope everyone is doing alright.
I have very active RRMS, was finally diagnosed in 2011 and currently on Fingolimod, although they want to remove it to give my liver a rest because it had a dicky fit after steroids earlier this month.
I’m quite rightly terrified and honestly didn’t know where else to go.
Lou x
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Sorry you’re having a rough time, Lou. What are they proposing to switch you to? I assume from your steroids reference that you’re getting break-through relapse activity and it’s time for a switch-up? This happened to me (and it wasn’t a fun time) when the Avonex stopped working and I was switched to Tysabri, which has been great. I hope that you get things back on a even keel soon.
Welcome Lou, ‘scream, shout, let it all out’ as they say’.
We are all here to listen, share and support where we can.