New to the forum. Accidentally found so hey there
you know since diagnosed age 21, 15 years on I continue to ignore I have it. hey I’m lucky compared to what I’ve read or saw on tv. I have a constant numbness in my left arm. Other symptoms I’m getting are random tightening muscle sensations. headaches, random pain, blurred vision. Warm buzzy feeling. Intermittant and never anything I can’t cope with. so I’ve lived life and suffered in silence. Nobody I know could even relate to me and always felt people perceptions change if you tell them.
so I largely ignored I had it and always have the feeling of being different. Worked all my days, lived a normal life but don’t feel it’s something I can be so open about. Its difficult to explain to the naive.
Moving on with my life should I just stay ignorant? Seems to have worked so far. Its never something I can fully accept, ignored and suffered in silence. Nothing much in the Glasgow area. Attend yearly ms reviews when possible.
there is always that lingering fear but largely never holds me back. Had anybody went through anything similar? Any advice on how I should move forward? Maybe I’m treating things the wrong way. I don’t know, iv never knew anybody I could ask who could actually advise. Doctors aren’t much help in my part of the world.
Cheers for reading
Hi hun, why change something that is working for you. I think sometimes treating it like its not there is the way to go.
Weirdly since i was finally diagnosed after 10 years, my symptoms have slid downwards coincidence or not, i am not sure.
Lots of people have illnesses they dont talk about to others and just get on with them.
You sound so chilled out and laid back i would carry on the way you are lol… as soon as you say to someone you have MS, they run the other way, sure they think its catching lol.
I love your attitude so refreshing.
1 Like
Waiting 10 years for a diagnosis would be tough. Mine was a whirl wind shock to the system. I couldn’t have it pull me back. 21 years old. Happened when I was 20. Only waited about 2 month for actual diagnosis. Never noticed or remember symptoms before. Just felt like I was going through some sort of change. Hey normal for someone new to adulthood I thought
Thanks for the kind words. It’s re-assuring to know I haven’t treated it the complete wrong way. In fairly recently times I told my manager at work in confidence. Wow what a reaction I didn’t expect. Felt I was telling her I had been diagnosed with HIV lol. Nastiest reaction ever. In hindsight I can’t help but feeling I did the wrong thing. Amazingly I told a work friend around the same time who offered me support, he himself suffered bad depression years ago and opened himself to me. Thought I’d pay the same respect. Held in the same regard by him, true friend it works out
It plays on your mind thinking maybe after I find a new job now, that I should be forth right. Not something I would recommend if anybody goes through the same dilemma. In my view staying ignorant has to stay
I had my first symptoms when I was 20. Had a few tests at the time but was told they didn’t prove whether I actually had MS or not. So when the symptoms went away, I assumed I didn’t have it and got on with my life. Now - 35 years later - I have been diagnosed with MS. In hindsight I have had symptoms on and off over the last 10-15 years but they were fleeting and I always put them down to something else!
If you can live your life pretty normally then do it! It doesn’t matter if you have MS or not - you are who you are, be yourself, be as happy as you can be and just live! 
1 Like
Hi John, yes thats what i fear when you tell people you would think we had something contagious. I knew what i had wrong with me, i can pinpoint the time and day it started on holiday when i went blind, but it still took 10 years, the fact is at my age you dont get MS lol…(65) now, so was 55 when i had my first symptom.
I think MS doesnt make you, as you are who you are with or without it. Just enjoy your life so many of my friends now at my age are ill with cancers and heart issues, in a way weirdly i feel more healthy then them sadly.
As long as you do your job it shouldnt matter in the grand scheme of things. x
Cheers people. Sometimes you just feel isolated when stuff comes up. Happy to know that other people in the same boat and I’m probably only been a bit paranoid in a way. Difficult understanding when you don’t fully understand
1 Like
Crazy Chick, I couldn’t agree with you more!
Alison