Hi everyone. Have to say I had a brill MS consultant, unfortunately he has emigrated last year & I am under a new one. I am not saying he is bad but the faith & trust I had with my first one will take time to build. As we all know MS symptoms are profound, differcult to understand & down right scary at times & thats us avin em!! Its hard to explain to someone how we feel. The fact that these bizarre “happenings” are not experienced by the very people that are looking after us & they have been learned through text books (albiet advanced ones!!) does not mean they know the extent & effects it has on us as their patients. As a health care proffessional I understand how easy it is to steriotype us all as “MS sufferers”, but everyone is an individual & should be recognised as one. They should learn to relate to our fears & hopes as they would if it was themselves or heaven forbid a loved one they were caring for. This attitude makes all the difference. The word is empathy, they should put themselves in “our shoes”. So, next time we all see our neuros, remind em they are PROVIDING US with a service, NOT the other way round!!! Tracey x
Innit da troof!
luv Pollx
Where are you? Who is this super guy?
luv Pollx
My experience of Neuros has been totally different.
The first one (private) was wonderful. He did all the tests, got me back into the NHS for the LP (done by one of his colleagues) set up the first course of IV steroids (and then told me), and then changed the Dx from TIM to MS.
Everyone on his team (he was head of Neurology) were just as good/caring/helpful. A year later he had moved away.
The next one was even better.
So were his team (all new). He saw my dropped foot at the beginning of this year, said “I can do something about that”, referred me to Odstock for FES, and within a month I had my first appointment.
I have heard through the grapevine that he is leaving as well. I have to see one of the MS Nurses in 4 weeks, so I will find out then. That gives me a problem:
Do I change hospitals (the present one is 28 miles away, and a car is the only sensible way to get there) and go to a local one (only 12 miles away) which is accessible by bus and has hospital transport etc. This hospital has two Neuros, and I do not know the one who handles MS. I know the other (Parkinsons is her speciality) and the local Neuro Nurse (who visits my wife), but she is not an MS specialist. The present hospital has two MS Nurses; the are both wonderful. They return e-mails. They return phone calls promptly. They always seem to have time to discuss any problems. It was one of them - not a Neuro please note - who started the DMD process for me (and who now writes the prescriptions for my Copaxone).
There will come a time when I am unable to drive - so I will have to change hospitals then. But right now? No, I am not sure about changing. At least I can put the decision off for enough time to find out what the person who would be my next Neuro is like. However it is not an easy call to make, and one I do not want to make.
Geoff
[quote=“MS43”]
Where are you? Who is this super guy?
luv Pollx
[/quote] Dr healds York district teaching hospital. and i will also add he dose seam to know his stuff when it comes to MS.i was DX’d in about 4 weaks from first appointment with him.