Neurologist letter!

Hey guys so i went for a check up with my neuro and this is the letter he sent my GP. You think it sounds all good? Just get so nervous everytime i see him cos it reminds me of my diagnosis! Would love to know what you guys think?

Much love xx



DOB 9.12.1985

She is settling down well and, although her colour vision has not returned, her field is better and she now sees 6/9 + 2. I think we will do a visual field next time she comes. We talked mostly about her coming to terms with the diagnosis. She has started a treatment known as LDN - she is going to try from 1mg up to 2mg over the next couple of months and I think she is managing quite nicely. We talked again about whether or not we would use disease modifying agents, should there be a further attack, and that would depend on the timing of the attack; and how she would manage her fatigue without pharmaceuticals. Overall, I am pleased with her progressed.


Best wishes.



That seems rather positive, with the optical  symptoms receeding and help with fatigue (though I guess that is about management rather than alleviation). It sounds as if the docs are working well for you.

Thanks, yea i guess  it is positive and i was suprised that he was ok for me to go on LDN as i know usually dr's and specialists are quite anti it. Yea the fatigue is not pleasant!! Do u suffer with it too? 

Yes fatigue troubles me too. Ambient temp over 20 and acvtivity are major triggers. I wish a proper trial of LDN would be done - take years though.

Hi Becky - I am investigating ldn. Originally my neuro was pretty ambivalent saying there was no harm he didn’t think it works ,but might have a placebo effect. GP reluctant to prescribe. Emailed neuro to get opinion in writing - now he is changing his mind saying no he doesnt recommend it as might interfere with .
Sorry just rereading this thread this doesn’t actually answer anyone’s question
Min xx