My wife has recently been diagnosed with progressive ms, she has had a clinical test, mri scan, visual evokes test and lumbar puncture, the consultant has said that all results are consistant with ms. He has told us there is no cure and treatment can only be given to the symtom at the time i.e. painkillers etc.
We have been told that an appointment will be made to see the consultant in 6 months and that my wife will see a ms nurse in about 4 to 5 weeks.
My wife now feels as if she is in limbo, does she just wait and accept that there is nothing she can do? she is very emotional at the moment, we know that there are 2 types of progressive ms yet we do not know which has been diagnosed.
There has been a steady deterioration in her health over the last 12 months, in particular how far she can walk, loss of balance and eyesight.
Is there any medication or treatment which can slow down the rate of deterioration? Will a small amount of regular exercise help?
We have lots of questions but after leaving the consultant when she was diagnosed, we did not know who to turn to for advice, it just seemed to end abruptly.
I want to be able to reassure her but it is difficult when we dont know what we are dealing with.