Ms ruining my life

My ms diagnosis has ruined my life I have no one that understands I have stress with my house, money now work, I have diabetes as well type one. My fatigue i am finding hard to deal with I have been put on tablets but they are no longer working, work is a big problem I work with two older ladies who get tired due to being older but I don’t think they understand my tiredness I have tryed to explain but falls on deafs ears, I am getting upset a lot I cry to myself, I have a boss that is not understanding, I don’t think my ms is getting worse the job is, I am looking for another job but in this day and age is hard, I am 29 did badly at school, I just cannot be bothered with anything anymore i was not like this a few years ago, my partner think I am attention seeking sometimes but quite the opposite my sex life gone I can’t be bothered I just want to get on with life but I can’t.

Hang in there, ms can be challenging I know, do you have anyone you can speak to? parents or a good friend? I was finding work hard and got down thinking no one would want to employ me now I have ms but I applied for jobs and I start my new job on 3rd March.I’m in a relapse at mo and so fed up but I’m hoping to be well enough to start my new job.I didn’t even sit my gcse’s I left before them to get a job stupidly but it’s worked out ok.The fatigue can be bad can’t it?! I have 2 kids as well one of them 3 so life is tiring lol I’m sorry I don’t have all the answers but if you wanna chat anytime just message me it can help sometimes to talk to someone who understands what it feels like.I feel like an old woman at the moment with this relapse I’m only 33! But I know I will get there and you will too

Take care Cheryl xx

Hello Charlotte, I hope Cherly`s words have helped, as they are so true! But see how she has succeeded in gaining new employment…well done Cheryl.

I know how a chronic illness can affect us…our thoughts, our energy…everything!

These older ladies at work, will probably never understand an illness they cannot see…so telling them how you feel will probably be a waste of your precious energy.

Sounds to me like you could do with couple of weeks of total rest. Would that be possibe hun?

I also wonder if you may be depressed…you have a poor idea of your self worth and I`m sure you are much better than you think. Maybe a chat with your GP would be worthwhile.

Keep talking to us and we`ll do our best to support you.

much luv, Polyxx

Hi there! Getting the diagnosis is scary, I’m 36, I remember feeling all the feelings you have now… Like there’s no end in sight! There is… It will get a little easier! I’m now doing the things I never thought I would ( camping, bike riding, aqua fit) I can’t jog or scate anymore, but I’ve found the Aquafit just as much fun, and I feel I can do more in the water than on dry land :slight_smile: Alternative therapies have helped, I’ve had Mctiminey, kinesiology, and reflexology… All do different things to you, but makes you feel really good! Have a cuppa and a moan to someone, I don’t think that you need them to understand… They just need to listen to you! Like Cheryl, I’m here too if you need to vent! Nella xx

Couple of weeks off, yeah right, been to gp useless, I am so low at the moment non of my family understand, my confendence has gone I can’t defend my self if I get any sarcasm from anyone.I am at risk off losing my job, because I am on a second stage warning because of my Bradford score is pver 100 and I already have had a first stage I can’t go off sick for a long time. I am not having children I am not maternal which is a good thing in one way and because of my husband disability and his gene could pass on what he has got not fair to bring a child up like that and what he went though when he was little I just want to go to sleep and not wake up

hi charlotte

have you got a union? or speak to CAB about how the DDA can protect your job.

did your gp offer you any anti-depressants?

its awful when you feel that you can’t defend yourself if someone is sarcastic.

i’d be tempted to flip the finger!

don’t let yourself slip down the well of depression.

talk to somebody. the ms society have a number you can ring.

i dont know it offhand but stewart cluminsky, name appears at top of everyday living can help you.

carry on chatting to us on here

love carole x

Charlotte look into it but if your absences are ms related and you tell your employer this they have to look upon you more favourably when going through their silly sickness policy stages as ms comes under the disability act.Please try your g.p again and ask for antidepressants,there is no shame in taking them and they can really help you cope.Screw anyone who is sarcastic with you they are small minded people with nothing better to do, I had a woman at work who would completely blank me for no reason and I worked in a small place, it got me down yea but then I thought sod this I can find a better job! You can too if you wish or stay where you are and make them aware of ms and if they already know make them aware of YOUR rights.Like Poly,Nella and Carole have said please keep talking to us don’t feel you have to suffer alone, everyone is lovely on here and really supportive and know what your going through.I’m typing this with numb fingers by the way so if there’s any mistakes I apologise! on’t be alone

Cheryl xx P.s thankyou Poly on the congrats!