Hello, I’m new to this forum. I’m a fairly athletic 43-year-old male who was diagnosed with relapsing-remitting multiple sclerosis (RRMS) in March 2021. My initial treatment involved a 5-day IV steroid course, followed by fingolimod. Unfortunately, after six months, fingolimod caused liver issues, so I switched to Tecfidera in 2022. I had been in remission until April 25, 2025, when I experienced a relapse. An MRI confirmed this a few days later after I developed severe, movement and impact-triggered numbness and tingling throughout my body, even affecting my torso. I recently completed a course of oral steroids this past Friday, but I haven’t experienced any relief yet. I’ve requested IV steroid treatment from my neurologist. I’m dealing with significant anxiety during this time. As a single parent to a 14-year-old son, with two dogs and a cat, I manage a busy household and work as a civilian after retiring from the military. I’m hoping this current episode, which is primarily sensory, will be temporary, unlike my first relapse that mainly involved motor functions. I’m open to any additional advice or thoughts on what else I might consider.
It’s an awful shock when MS that’s been quiet comes back to bite.
My only suggestion is that you review your medication with the neurologist in the light of your recent relapse. If it isn’t doing the job – and this relapse suggests it isn’t – you might need something stronger.
I’m sorry that’s the steroids don’t seem to have helped much so far. I doubt whether they’ll be anxious to prescribe more so enough to the last batch.
In my personal experience these things really can take time to work as well as they’re going to, and I hope that the steroids plus the natural healing process combine to make you feel much better very soon.
I don’t know much about steroids but , as I understand it, they aren’t an immediate cure for symptoms but simply speed up the process of recovering our sensory or whatever symptoms and they don’t guarantee full recovery. As @alison100 says I would speak to your MS team including your neurologist about changing your DMT
Venture to the E.R. yesterday, so they could get me in for another round of MRIs, especially T-spine which they excluded 2 weeks ago. Neurologist today informed me that the severe torso discomfort, numbness and sensation is called the MS Hug, which based off symptoms is coming from lower Brain stem. MRI tomorrow to confirm, IV steroids started today for 3+ days, with Baclofen to assist with muscle spasms.
Doctor is recommending a switch from Tecfidera (oral med) to Kesimpta (injectable). Anyone familiar with the DMT?