I’ve never had one, and didn’t want one.
I’ve been offered “coffee and a chat” with one, but got the impression it would be a bit of a pointless “there, there” type exercise - not my style at all, and certainly not worth going all the way to hospital for.
I have a very pragmatic approach, and if I have a specific practical problem that needs fixing, I will ask, but I am not looking for general emotional support, and certainly not for additional hospital visits, just for a chat. I find it stressful to go to the hospital at all, and do not want additional visits with no clear goals. I think it’s a waste of my time, and probably a waste of theirs as well.
I have an appointment I did not request with an MS nurse in March, regarding very minor bladder issues. They have either lessened since I first mentioned it, or I have adjusted to it (there is no leaking or wetting involved - I just have a weaker bladder than I used to - but it’s no worse than some “normal” people have always been - just a bit different for me).
I am still in two minds whether to cancel it, as I’m pretty sure I will simply be told to drink more water, less coffee, and less wine, but that other than that, my toilet habits are not “excessive”, and there is no real problem at the moment. So I feel it will be a bit of a wasted journey, even now, and that the appointment could go to somebody who really wants it!
I realise the hospital are trying to be proactive, but they do not know me well enough to understand I am not the kind of person who wants intervention unless I’m really struggling, and have initiated it. If the request didn’t come from me, I just get stressed about it.