Thank you Maxie for your open mindedness, all I wanted to do was let people know about a holistic treatment that is helping me. I never wanted to cause offence or anger, I am quite shocked at the aggressive reaction I have received. To be honest this is my first post on this forum and it will be my last. To answer Monya’s question, yes I do have ‘a multitude’ of lesions, I have not had a lumbar puncture though. I don’t know whether this treatment has affected them or not but as you and Maxie say, there can be many reasons for brain lesions. They have no correlation to the amount of disability and are not peculiar to MS. I’ll close this thread now, Again I apologise for any offence caused, I’m going to get on with getting better 
xx
I believe we should all have ours views but she has overstepped the mark by what she has said if she had put I’ve had this treatment and its worked for me maybe it would help you fair enough but she is not saying that and is offending alot of people and as shown has no proper knowledge of nerves and what does what . I think this is why she has rubbed everyone up the wrong way
Hi Jen,
I am glad that you posted your comments because I think I might give it a go if my planned treatment fails to work. The Essential Health Clinic seemed to say it showed some success. I can see that you were innocently trying to let people know the joy you were getting from your treatment and you wanted others to try it too. I too on Saturday upset folk with a term I used in the flu-jab post (every day forum) and was initially very upset from a particular comment. The person took completely the wrong interpretation to my comment. Thankfully it all resolved itself very well but I now realise to be very careful in what I say.
I would love to hear that your progress to better health continues to improve. Please send me a private message any time as I would be keen to hear.
Love Moyna x
Jencor hasn’t rubbed me up the wrong way because she obviously believes in what her practicioner has told her. However, her practioner has. It’s his comments and attitude that I find offensive and demeaning.
Shouted down or challenged?
Personally I am grateful to people who share their knowledge to challenge some of the misleading and dangerous twaddle that gets posted on here.
Hi Jen
I am sure you did not mean to upset people here and I hope you reconsider posting again. You must understand that everyone reacts differently and all of us have our problems which may make us more sensitive and prone to over-reaction.
There are so many unscrupulous people out there offering so called “cures” for MS and other diseases and we are all ( diagnosed or not ) vulnerable and desperate to take control and do something. So I am sure you can understand some folks reaction.
I myself am thinking of try LDN which again is un tested for MS but seems to have a large following, but I am sure that there are a lot of people out there who will say I am totally reckless !
So please don’t disappear off the forum, everyones experience is different but non the less important.
Maxie
I wasn’t particularly angry before, but I am now.
This thread was posted on the New Diagnosis and Before Diagnosis forum; a forum largely frequented by people who have yet to develop a good understanding of MS, some of whom who may be desperate enough to be willing to spend money on anything made to sound like it might help.
The title encouraged us to get a spinal symmetry evaluation before we started drug treatment. What do you reckon the likelihood is that the orthodontist wouldn’t find anything to treat - at £100 a session + “appliances”? (Because sure as fate he will be the only person “good” or “knowledgeable” enough to be able to do it properly!) So then the unwitting are dragged into an unproven treatment which, by the original poster’s own admittance, can take 2 years - and we are to do this before we start drug treatment? Do you know just how much damage MS can cause in just 2 years? Did you know that DMDs are most effective at preventing disability if started in the first 2 years?
If that isn’t irresponsible / bad enough, the replies then go on to include misleading and totally incorrect information and utter scaremongering. In what way is telling people that DMDs are a scam and that they destroy our immune systems, cause fatal side effects, etc, “just” letting us know about something that has helped them as an individual / not wanting to cause offense / “innocent”, etc. In what way is suggesting that DMDs are bad for us just trying to help?
I did not take anything that the original poster said “in the wrong way”. This was not a case of misinterpretation! How else would the words “money making scam”, “dirty money”, “cancer”, etc, be interpreted?!
Then the original poster goes on to tell us to take control of our own health and we’ll “be fine”. How many of us are qualified in neurology? How many of us can read and fully understand original research papers? How many of us have medical degrees? How many of us can prescribe our own meds? How many of us actually have the experience and knowledge to manage our own treatment on our own? More importantly, how many of us would “be fine” if we ditched our DMDs and took up with an orthodontist in charge of our treatment?!
Some of you want to allow this sort of thing to go unchallenged? Then you’re using the wrong forum.
Personally, I always get just a touch suspicious when someone who has apparently only been a member of this forum for a few hours, or a few days, pops up and starts telling us that the whole mainstream medical profession has got it all wrong - and that MS is not an autoimmune disease - and uses more than one thread to do so.
If you take what Karen said:
“I did not take anything that the original poster said “in the wrong way”. This was not a case of misinterpretation! How else would the words “money making scam”, “dirty money”, “cancer”, etc, be interpreted?!”
I think that my answer would have the word “shill” in it.
A lot of people here have differing views, and offer differing opinions - they do not push out their biases as facts.
If all the people who claim to have discovered the real cause of MS, and those who claim to have discovered a cure for MS, were all put into one room, I doubt if any two of them would agree. This would suggest that most of them are just plain wrong - it might even suggest that all of them were just plain wrong.
Geoff
Geoff, I am suspicious of anything on the internet. Anyone considered this was wriiten by the person offering the treatment?
BRAVO KAREN!!!
Well said
Belinda
Ditto everything that Karen said. As I said earlier the psychological harm that this kind of baloney could inflict on people at a very difficult time, is potentially far reaching.
I also ditto to everything Karen said (although I don’t think that’s proper grammar!)
Just makes me think of all the people who struggle and survive with their MS, and all the MSers who have gone before us, and all the scientists all over the world working away like mad to find new treatments… and all the fundraising to pay for all that hard work… and yet someone can still come out of nowhere with some crazy unresearched, unscientific, unethical nonsense and convince people it’s true!
It’s a mad mad mad mad world…
Pat x
I think that this forum is very good in accepting differing views offered by many people. However, this poster was not offering a view or an opinion but stating what she expressed as a fact. As DoctorGeoff said others ‘do not push their biases as facts’. By all means, offer your opinion or view on a subject, do not try to convince people that an incurable illness is in recovery! Teresa xx
Well, the OP wrote:
So I did. Is it not just a little strange that a forum calling itself themsforum.org should be devoted to Body Assymmetry?
So then I wondered just who might be responsible for this forum/website, and when I clicked on the link “Our Team”, I was taken to a page that required membership before disclosing just who was responsible. Funny, that. What I did find was a disclaimer that reads, inter alia:
"The content of this site does not represent a qualified medical opinion . …
Do we assume form this that the Dr Amir who features prominently in the forum, and offers the treatment, is not qualified? Certainly, another forum that seems to carry mixed views, the qualifications for Mr M Amir do not seem to warrant the title of Doctor - but of course, there are quite a lot of surgeons (as Dr/Mr Amir certainly is) who do not use that title either (and discourage its use). Either way, I do not see anything that would suggest that he is qualified to offer a formal opinion on matters neurological - which might be what the disclaimer is all about.
Perhaps there is a good explanation. Let’s hear it … …
Geoff
I have to say that I agree with Karen too. My Nan has a saying that she uses to remind us to be wary of everything we read in the press, it’s: ‘paper doesn’t refuse print’, whilst this doesn’t translate perfectly to screen, the same can be said of the internet. We all have to be careful about believing things that we read. Equally, we have to be careful about what we write. This post suggests that all people’s problems can be solved with a simple (but expensive) treatment; to make suggestions like this is irresponsible and reminicent of the ‘snake oil’ salesmen of old. I am suffering ms-like symptoms but am undiagnosed, I am well aware that it could be anyone of a number of conditions but I joined this sight to gain information, communicate with others and find information about things I could do to help myself. Had I been more gullible (or maybe desperate) this post may have convinced me to part with a lot of money - this is wrong. By all means post about things that you feel have helped you, but not in such a way that you appear to criticise: the medical profession, the condition this site is based on and those suffering from it. We all approach illness in different ways but we should not offer false hope or suggest other’s suffering is imagined and unneccessary.
Very interestingly she also says this was her first post on here yet in her posting on the ‘msforum’ regarding a letter she sent to NHS Choices as well as attacking the MS Society it is clear she posted on here before but that it was removed (unsurprisingly):
Dear Sir/Madam,
I write to ask the reasoning behind your recommendation of the MS Society as a place for MS patients to acquire information about the disease. They do not impart any information that is not linked with its biggest sponsors, the pharmaceutical industry. Non-drug therapies are not only ignored but actively censored from being viewed at all.
I hope you will find time to peruse the following document which highlights the massive failings of a society that is supposed to make the care and education of patients a priority.
http://tinyurl.com/8e4odth
The social networks that have been provided by the MS Society are not an impartial place to go for information about treatments for MS. The following post was removed from MS Society Facebook within an hour.
Jenny Cornell
posted to
MS Society UK
4th October 2012 16:21 (2 seconds ago) near London
I have started an unlikely but amazing treatment which has made many of my MS symptoms disappear completely! I have been seeing a dentist specialising in cranio-dental and skeletal symmetry since June. I was found to have asymmetries in my teeth, jaw, atlas and pelvis so I have been wearing various dental appliances (braces) which are moving my teeth and jaw into the correct position. See the graphs for an indication of my progress so far and click on the links for more information about this life-changing treatment.
http://www.atlantotec.com/en/fundamenta … agus-nerve
http://www.atlantotec.com/en/disorders/ … h-grindin
No explanation was given for the deletion of my post. Many others have been censored and deleted for talking about therapies for MS that are not drug-based. People with diseases like MS deserve to know the truth about all the options for treatment available to them so that they can make informed decisions.
I would therefore like to request that MS Society are not promoted further by you because they do not have the patients’ best interests at heart.
Yours sincerely
Jenny Cornell
FFS!!!
Why does the idea that MS may not be an autoimmune problem seem to freak so many people out?
Is it not worth asking pertinent questions and forming research into other avenues?
EJC - amazing - you created a profile and wrote all that in just 25 minutes! Brilliant.
Utter hogwash. Your link is as fanciful as anything I’ve ever read - no pictures indeed - maybe because ‘Emma’ doesn’t exist! Emma Jane Cornell = EJC. Not even imaginative!
Jen* not Jane - my apologies!!
What a terribly sad reply.
The link I provided to Thisisms will clearly show 2+ years of posts. I chose to use the same moniker so I can clearly be traced rather than remain anonymous (where’s the irony smiley?).
The link I provided documents in a diary form Emma’s ups and downs.
Feel free to check with admin that my initials coincide perfectly with the genuine email address I used to complete my registration.
I give them premission to discuss this matter with you openly, just incase they feel they are breaching data protection in doing so.
I have nothing to hide, why are so many people so frightened when an alternative treatment is suggested?
Would it not be more prudent to embrace those willing to take it on rather than berate them for trying?