Hi everyone
My first post here. Living with MS since 2017. Not having any treatment. Am finding the hug the worse symptom by far, constant nagging pain around my lower ribs. I have other symptoms such as walking difficulty and continence issues. But this is really getting me down.
I’ve had two recent MRI which seem to be normal. Persuaded my GP to refer - he said ‘I’ve googled MS hug and it is a thing’.
Has anyone got any recommendations for relief? I use a tens machine and red wine currently
thanks for your time reading this
Ali
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Hi am new on this aswell I’ve been dealing with MS for 11years but this past year my MS hugs has massively increased. The first time I experienced a MS hug I genuinely thought I was having a heart attack. Now they are either really painful or I get intense nausea. Nurses wanted me on gabapentin to treat the hugs but I refused to stayed on them as you feel constantly drugged up and they also didn’t help in my opinion so I did my own research and found lions mane mushroom supplements . I’ve been taking 2 tablets daily I get the ones from Holland and barrett and I’ve noticed it’s reduced my ms hugs aswell as other pain. Hope this helps and good luck XOX
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Hi there
Thanks so much for your reply. I have heard elsewhere that this can help so with your recommendation I will give it a try!
It’s just so draining having constant pain!
Will keep you updated
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It really is draining , mentally and physically. Please do keep me updated I would love to hear your opinion on the lions mane if you decide to take them. We deal with MS day by day we got this 
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Hi @keets2016 . Just to say thanks for your post about Lions Mane. Interesting!
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Hi @alisonpeet001 . Another thought - have you tried magnesium? Generally good for muscle spasms.
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Hi thanks so much for your suggestion. I have tried magnesium for ‘busy legs’ - both tablets and a cream you apply to the soles of your feet. I hadn’t noticed much difference for this or the hug symptom. But thanks for taking the time to read and suggest.
Hi have started taking Lions Mane and will tentatively say there may be a slight improvement! I know it takes a while to start working properly so will keep you updated.
Thanks for taking the time to reply
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I know not everyone might benefit from the same thing , call me crazy but I have a deep gut feeling that lions mane mushroom is the missing ingredient to alot of potential treatments that can help lol. This past 6months+ it’s grabbed the scientists attention. I would always go for a afternoon nap with burning myself out but I haven’t went for 1 nap in over a month since being on these lions mane nor have I had a MS hug in the longest time . I do hope you get some benefit from them
Hi,I went into Holland and Barrett earlier and then over to a pharmacy to check if Lions mane mushroom supplements might interact with any of the medications I’m on. Unfortunately it can interfere with Gabapentin so I opted not to give it a go. As such I thought I’d point that out incase someome else is on Gabapentin, so they dont make a.wasted trip
Shame.
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Does anyone know benefits of weight loss injections for anti inflammatory purposes ie ? Would it help release muscle tension ?
Just an update to my original post - thanks so much for your suggestion of Lions Mane. I am definitely seeing a big improvement in my constant pain for MS hug! Thanks so much for taking the time to reply and suggest this.
I have tried taking most of the other medications suggested, and like you, found they made me feel sleepy, blurry and didn’t help at all.
It’s interesting that I have a lot of pain from where I broke my tibia a couple of years ago and it’s made no difference to this type of pain. But has really helped with the hug.
Hope you are keeping well and also thanks to everyone else for replying
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