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Moved onto secondary progressive

well went see my neurologist back in march he asked me if i was depressed as i wasn’t as chatty with him like i usually am when i see him, said i was because, as he had noticed my walking had become worse. so had a blood test to see if it was because of my thyroid (as i take thyroxine) and then a few weeks later received a copy of a letter he sent my G.P. it is one of those letters you shouldn’t open when you are on your own, i did, big mistake, it said it appears my MS has progreesed to secondary progressive. suppose it wasn’t a big surprise, suppose i had realised myself but just wanted neuro to confirm it. not overly upset about it, think its my mobility i’m upset about, hate the lose of the mobility i did have. so i am trying to be as positive as i can and waiting for appointment to see physios and getting more help around the house.

Hi, I too feel as if I’ve moved on to Secondary. My mobility/balance have gone to hell in a handcart, I would have opened the letter. I don’t normally check out E.L. glad I did this morning also sick of damn platitudes. MS sucks, I told my GP I was depressed so I’m waiting for the antidepressant to kick in… 2 weeks and counting We live with the cards we are dealt, take care M

Hi

I can remember when the consultant said that my husbands MS was now SP. Felt like a punch in the stomach, which to be honest was not a good reaction as it was nothing that we did not know. It did not change anything, just have to to the best that you can. I dont really see why your consultant did not discuss things with you, on reflection though our consultant only mentioned SP following a direct question. I think they are not comfortable in some circumstances. But it is all part of knowing what you are dealing with and using that knowledge as best you can.

(I would have opened the letter too!)

Regards

Hi Mooster,

I’ve moved on to SP too. Consultant told me and I’d realised, but it’s still awful being told whichever way

Jen x

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Hi Mooster,

I’ve moved on to SP too. Consultant told me and I’d realised, but it’s still awful being told whichever way

Jen x

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I’ve looked into SP, I may have mislabeled my problem, Progressive Relapsing seems to be what’s happening to me. How F£££ed are we with this hellish disease? Take care folks and be safe, M

Hi hellMS, I haven’t been told what type of ms I have. I don’t seem to fall nicely into any category. I started quite dramatically with pins and needles in hands and feet, ms hug and numb face. Ms hug went and I am left with burning in my hands, pain in arms and if I’m tired my face goes numb. Last year my foot and leg gradually got more painful and both legs tingle constantly. As I hadn’t had a definite relapse my dr said they wouldn’t advice dmd’s but my latest mri showed more lesions to confirm ms? What are your symptoms? Lynn