What next ?! Took my final 500mg dose of methylprednisolone this morning , feeling so weak but managed a walk around the block but my legs are so bloody painful now , aching and burning , my head feels so foggy / anxious and to top it all I’m losing my voice ! It’s awful when you don’t know whether it’s steroids or not . . . Confused and down !
Hi
Im sorry your feeling so bad at the moment let’s hope your steroids help, it’s so scarey this disease isn’t it, are you on any meds?
Keep posing if you can there’s always someone here to listen.
Wishing you well
Ann x
Over the years i have tried 3 courses of steroids and each time they weakened me so much that they put me in bed for a month! So didn’t work for me.
Unfortunately the neuros didn’t believe me saying, 'oh they can’t do that '.
Never again
I’m on Gilenya , have been for 10 months , on citalopram and mirtazipine for depression / anxiety , take baclofen for stiffness , I keep getting waves of symptoms , my anxiety seems to be back since starting the steroids , my head is so foggy and I feel so mixed up sometimes , hoping it passes , I had a few good months then my ms started playing up , hence the steroids , I feel worse on the steroids though , this morning was my last dose of the 5 days at 500mg
Hiya Gaz
Steroids are peculiar drugs. They often make you feel like crap. But then they sometimes have a different set of side effects. Sometimes they work at speeding up relapse recovery … and sometimes they don’t.
I’ve had the following symptoms, not all together or every time.
- Anxiety
- sleeplessness (almost always)
- ‘speediness’ - like I’ve taken an illegal drug
- ultra alertness, like my brain is working better
- extreme fatigue
- oesophagitis (like a burning feeling in the oesophagus)
- heartburn
- nausea
- blood in my poo
- awful metallic taste in the mouth (always)
- (afterwards) bruised feeling, I’ve described it like ‘I’ve been kicked all over’ even my hair hurt
- worsening of MS symptoms (weak legs especially)
- (afterwards) depression
- bad dreams
- feeling like I have a UTI but testing negative
- actually having a UTI - which became worse than usual because of the steroids
and others that I can’t even think of right now. I’ve just checked my diary for the last couple of years and they’ve all been things I’ve had during or after steroids. Looking at this list now, I can’t believe I’ve taken steroids so many times (probably 10-12 times over 19 years). Bear in mind though that I’ve never had every single one of these symptoms at one time.
So what you’re experiencing is ‘normal’ if there is such a thing that can be said about steroid use. If they work, it’s probably worth it, but if they don’t …
Hopefully they will work, the side effects won’t last too long and the steroids will do their job and kick your relapse into touch.
Sue
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