After 9 years of no support or neurological appointments (long story) I’ve finally been seen by a neurologist, who has now left me confused! I’ve had the post approved letter and it seems to contradict my diagnosis of secondary progressive ms from 9 years ago and only makes reference to RRMS. And also confusing me is they’ve suggested I start Cladribine tablets for one week followed by another week of pills a month later if I have a new active lesion, the reasons I’m confused is everyone here seems to be on injections and it’ doesn’t seem to be for SPMS.
Another issue for me is that my partner has leukaemia so how can we function safely with both of us being clinically vulnerable, even worse if he catches something it could kill him!
Maybe you ought to speak with your neurologist again now you have had time to think about what they’ve told you @Dollydaydream Ask them to clarify if you have RRMS or SPMS. Tell them that you are now confused with what they’ve now told you especially if you’re concerned about things regarding your partner’s condition. Wishing you all the best in finding out exactly what you have and what it means.
I echo what Freshairman says - your neurologist will be best placed to advise you. A chat with the MS nurse might also be helpful, particularly in relation to how you and your partner manage given your health issues.
I believe they have recently changed the guidelines for Cladribine and are offering it as an alternative to injection and infusion based DMTs. It is a lottery depending on your consultant/centre.