Hello again, next day so I had a little more time to read it now.
Sorry for my answers being all over the place.
It’s nice that you have an appointment rolling, it’s very important to keep pushing forwards in the NHS system it seems as they are apparently swarmed with work and will happily let those that don’t really need much help drift off a little by the sound of it.
Your symptoms seem like entirely common MS symptoms, but this can also vary significantly from person to person. They are fairly varied however and could at least individually have a number of other causes, which sometimes makes diagnosis etc. slow down.
Attacks are it seems often said to last around a month, so feeling like you got new trouble for indeed an entire month without getting better would be a common situation apparently. Then the attack might calm down and the body can start healing and compensating for the damage done, which might then make you feel like you are improving. This self-healing process is the strongest when you are young and recently diagnosed it seems, as the body gradually loses the ability to properly reform your myelin sheath (the cover around the nerves). This is also why it is important to put in effort to actually stop attacks if safely doable, because it reduces the initial damage and buys more time for healing while it is still possible. Many people end up with walking aids of some sort early in their MS it seems, as an early attack knock out their mobility and especially this early prompt steroid treatment perhaps wasn’t easy/possible meaning that initial untreated damage got worse than it needed have gotten.
I too would have been unable to walk from my 3rd attack which made wheelchair bound in hospital for a few days, but rapid steroid treatment made only some weakness and slightly weak sensation remain, with strength mostly returned.
I can as such still do jogging for example, and basically function without any aids in everyday life. The recovery power of the human body is rather an impressive matter if given proper circumstances to work under!
More specifically to your intense pain question, it is not something I have experience with personally and have only heard about very little, but very overall generally speaking about MS, your nerves are being done in well and proper meaning all sorts of abnormal sensations can occur depending on the extent of the damage. I for example, along with it seems many others, have phantom itches. That is to say, randomly feeling very itchy various places despite there being nothing actually itchy there, and as such scratching it does nothing because it’s very simplified just the nerves mistakenly sending a “it’s itchy here” message to the brain.
I can easily imagine pain being similarly disturbed, making it feel stronger in some cases. An exposed nerve is very sensitive, so suddenly getting very hot or very cold for example will also quite possibly make any uncomfortable symptom you have feel stronger than normally.
However again huge caveat here that while I do think actual pain as well sounds very possible, I do not have any experience with it and haven’t heard about it much, so that could also be entirely unrelated, I am mostly just speculating. In my case at least random unexplained pain is mostly limited to when I get rather cold somewhat quickly.
It was another endlessly long stream of nonsense from me so sorry about that, but I do hope some of it at least can reach and perhaps even help you a little. I really hope that MS appointment works out well for you! Do come back and tell us how it goes. We can sigh with relief and joke about it, or grumble with displeasure at the bad news, all together! You’re not alone at least. Feel free to share with us freely, speaking it out loud often helps even if just as relief from unloading the stress!
