I have accepted the limitations that my MS has brought but sometimes on the odd day I feel how unfair life can be. After years of MS I have accepted by limitations and now manage my time and abilities more effectively. I try never to get mad, to chill as much as possible and to never take those around me for granted.
My main limitation is noise sensitivity. I spend a lot of time at home. If I visit anywhere I have to ask for music to be reduced or turned off. So this means shopping is now mostly online. I never get to the theatre, to festivals or even the high street. If noise equalls intense neuropathic pain your choices are these days severely limited. Others are often offended if asked to reduce the noise they are making - it is their right to enjoy themselves however they like and I should be ashamed to even expect them to have any regard for me or anyone else. How do we combat this attitude?
I have to use a wheelchair - another limiting factor which we will not bore you with as I am sure you can imagine.
Symptoms need managing and they also limit life and choices in life.
What are yours and how do you live?
After many years I now have quite a good life, have given up feeling guilty and regard myself as a professional artist and not a cripple. I am much more relaxed with me, it has taken practice and patience but I have got there. Nothing is insurmountable. Are you there yet? If not where are you on your journey to living rather than existing?