maybe more of a rant and unload as i feel i have no one to really talk to or those i can talk to wont understand and react badly but i am one worried individual (41 yr old male)
it all start mid april with tinling in my right lower leg and then a bit on my right elbow and side of face. went to GP who picked on my blood pressure…the tingling would then mostly be on the right lower leg and happen pretty much daily , 10-20 times but only for 2-3 seconds generally when i had started walking after sitting. Ended up in A&E as my right leg seemed a bit swollen, neuro tests ok, bloods ok (not sure what they tested) and then a test and scan for DVT as i had taken a long haul flight just before but that was all clear. Potential issue with varicose veins so was referred to vascular surgeon who recommended treatment on my varicoise veins.
After another epiosode of feeling a bit unwell (no blurred vision or balance issues) ended up in A&E again who recommended a scan, unfortunately it was midnight and they could not do it then. another referral (private luckily as meant my GP could wash his hands). by now was mid may and had the tingling episodes (2-3 secs 10-15 times a day though think my record was 50-60 times) for every day maybe bar about a week. normal neuro examine but recommeded a MRI to check, it came back with 6 areas of “inflammation”. no comment or diagnosis made and then recommended a follow up in 6 months. Surely if there was any reasonable risk he would have said something ? I know MS is hard to diagnose but a professional has a duty of care to notify patients of risk, after all it is not as if I am not worried anyway.
Anyway tingling subsided a bit over june and first have of july to maybe 2 days in 3. then had my variocose veins operation in mid july and co-incidentally tingling stopped until it kind of returned 2 days ago but in a very muted form, almost a ltiny little pulse type feeling which unless you are very conscious you would miss. other symtoms i have had a tightness/pain near my right eye, sometimes my right arm feels heavy but there is no physical weakness and often my right shoulder seems a bit stiff but only notice it when i get undressed, a couple of occassions of pins and needles in fingers (both hands at different times) and probably the worse is ringling in the ears since 20 June which i really only mainly notice in a very quiet environment.
Of course have been to the GP who say nothing. All this worrying caused issues at home to extent my wife came with me to the GP and as they did not mention MS then she thinks they do not think I am at risk and I am been a worry guts. I was told I need to sort my anxiety out and was placed on meds for that and have been referred for cognitive behaviour therapy for anxiety to do with illness. I am having to keep stum at home as when i do have an outburst about my symptoms my wife says both the neuro consultant and GP did not mention MS and they would not be doing their job if they should have mentioned if somethign was at risk even if not definite. I have maybe not helped myself my doing a lot of internet surfing but this forum seems very sensible and real
I am perplexed with how i have been treated by the professionals surely they would have said something if they thought i was at risk but with the backside covering behaviour we tend to see in many areas of society now think the silent treatment might be there way of sitting on the fence. I just want to know if I am at some level of risk based on what they have seen afterall you go to these people for expertise but to be honest i came out feeling relieved nothing serious had been diagnosed but on reflection worried by the non commital nature.
any advice or guidance greatly appreciated. i am trying to get on with things and not worry and am going to have it out with my GP re “surely I would have been told if there was anything more than a remote risk of anything serious”.