Maybe we should start a new movement to ban unhelpful MS labels. If a person may be having relapses, they should be entitled to DMDs if they want them. Telling a person they are no longer RR but SP therefore cannot have a drug that might still help to prevent further disability, is at best unhelpful and at worst damaging. My neurologist when asked recently described my MS as “essentially relapsing remitting”. I actually feel like I’m with the other people who are maybe at the end of RR and becoming progressive. But I’m still entitled to take tecfidera because of his wording!!
BTW the best known record by the band Stealers Wheel just came on the radio, this is the lyrics to the first verse:
‘Well I don’t know why I came here tonight,
I got the feeling that something ain’t right,
I’m so scared in case I fall off my chair,
And I’m wondering how I’ll get down the stairs,
Clowns to the left of me,
Jokers to the right, here I am,
Stuck in the middle with you.’
Thought it fitted very well!