Hi, this is my first post here despite caring for my mum for so many years now.
I’m 45 and Mum was diagnosed with MS 43 years ago, she tells me that very little was known about it back then and her treatment over the years has been inconsistent - the last 20 years or so she’s just plodded in with only Baclofen in her medicine pot to indicate she even has MS. 14 years ago my Dad left her and she moved in with my husband and very young family. There’s been a fairly rapid decline over the last decade, made worse by a fractured spine due to a fall 4 years ago and she is now in an electric wheelchair full time.
Last Friday I called an ambulance as she displayed the FAST symptoms indicative of a stroke. She was taken into hospital and is currently on the acute stroke unit but the team believe that she didn’t have a stroke and it’s a major MS attack. When I went in last night she was being fed by the nurses and turned 2 hourly. Both hands have curled in on themselves and neither leg has any feeling which, if things stay this way, will have a devastating impact on my ability to care for her at home due to having 4 children, a job and a smallholding full of needy livestock.
Our MS nurse has apparently resigned and not been replaced, I’m an only child (ex-nurse which probably makes things worse as my imagination is running over time) and I’m just feeling a bit lost and scared right now. Would appreciate any advice or tips anyone may have - thank you