I was diagnosed with RRMS last month after 2 relapses in the last 16 months both of which resulted in a misdiagnosis of an inner ear disorder as they mimicked exactly that. Eventually on Sept 11th of this year It was confirmed that it is in fact MS. I am left with some distance double vision and my walking balance still hasn’t got back to where it was originally as both relapses seem to have left lingering affects. I’ve lost so much of my confidence and my spirit seems very very up and down. I’m not sleeping well at all (which isn’t helping my balance either as I’m shattered the following day) and I’m terrified of what the future will hold for me…My father passed away aged 49, 25 years ago when I was 21, he had a very very aggressive form of MS and back then there were no DMDs available…this has left me physiologically scared re MS and now that I have been diagnosed too Im thinking the worst some days…although logically I do know that being diagnosed in 2017 is not the same as being diagnosed in 1977,like my dad was.
I start lemtrada in 3 weeks time as I want to give myself the best chance possible of leading a normal life…and I’m just looking for some words of hope and encouragement please…and any advice on my lemtrada treatment and how to manage it would be great…it seems I’m on such a long, lonely road at the moment, I just want my spirit back…
thank you everyone