Hello. First post on here, so hopefully in the right place.
I’ll start off with a brief history.
I was DX with RRMS in Dec 2015 after having 2 relapses that year. The first one was in May and the second was in Nov. The first time i had any symptoms was back in 2011, but they thought it was Guillain Barre syndrome. The years after this i didn’t feel too bad. I would get tired very easily and fall asleep as soon as i stopped moving but put this down to working hard. The relapse i had in May knocked me for six, was signed off work for 6 weeks and generally felt awful. I got referred on to the neurologist ( after many trips back to the docs) and had my first MRI in Oct. Had my second relapse in Nov, another 6 weeks off work. I’ve had various symptoms including numbness and tingling in the left arm and both feet/legs, vision disturbances, fatigue, balance, mood swings, restless legs, toilet troubles you name it. The results came back in the Dec. It was completely unexpected and im having difficulty getting my head around it all.
I went to see the specialist consultant in January and had to have another MRI to see if the MS was active. It is. I have been given 2 options on which treatment to have. Either Lemtrada or Tysabri. I’m leaning towards the Lemtrada, but what i really wanted was some advice or some information from people who have had first hand experience with either of these DMD’s. I like the idea of only having one set of treatment over the year, but also worried about the possible side effects and the impact these will have on my personal and working life. Work is very important to me, i have worked since i was 13 and the thought of not being able to do my job and support my family is freaking me out. I suffer with Mood swings, mainly when im tired, but i find it very difficult to give in and rest even after my wife suggests it. I don’t want to push my family and friends away, but i feel very alone in all of this.
Any advice or information would be gratefully received.