LDN

[Inactive_User]

@david603

LDN is just one of other things people can experiment with to see if it will stop disease progress for them. The other advantage of LDN is it is simple and cheap to try even if your PCT will not fund it. It is therefore available to the majority of people with a diagnosis of MS in the UK.

WHOOPEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE!!!

At last, we have something true, unbiased, unexaggerated, and even possibly persuasive!

Thank you!

Karen x

Yes, you even get a kiss for that one

[david603]

Karen

Thank you very much now is all we need you to do is admit that on an individual basis when people take licensed drugs they are equally experimenting with them in the sense that nothing works for everybody and therefore however well proven something is there is still only one proof that something will work for you and that is to try it.

The discussion therefore is about what evidence an individual requires before trying a treatment.

I say again however what has all this to do about the original question?

[david603]

.

Lapreguiceira

Now that I do find suspicious. Someone so dedicated to discrediting every thing I post that they store things from the old message board.

I trust you will be putting up the comment from the moderator that admitted in that debate some of the posters MIGHT have had other motifs.

I do recall the debate on the subject and remember the moderator post, but unlike you I have not kept copies

[Inactive_User]

@david603

Karen

Thank you very much now is all we need you to do is admit that on an individual basis when people take licensed drugs they are equally experimenting with them in the sense that nothing works for everybody and therefore however well proven something is there is still only one proof that something will work for you and that is to try it.

The discussion therefore is about what evidence an individual requires before trying a treatment.

I say again however what has all this to do about the original question?

What? No kiss?

[david603]

Karen

Well I would offer but I now know I have to be careful because someone is storing everything I write and I am sure there is a law against grooming on the web.

[Inactive_User]

@rizzo

@david603

Karen

Thank you very much now is all we need you to do is admit that on an individual basis when people take licensed drugs they are equally experimenting with them in the sense that nothing works for everybody and therefore however well proven something is there is still only one proof that something will work for you and that is to try it.

The discussion therefore is about what evidence an individual requires before trying a treatment.

I say again however what has all this to do about the original question?

What? No kiss?

ROFL

[sherbet]

I haven’t had any luck with all the different ms injection, they made me ill and stopped me from leaving the house. I don’t know if the LDN will help me but I think we should all have aright to find out. I also do understand that what works for one I know doesn’t always work for another.

A man I have heard of through the chemist that makes my LDN, was suffering really bad fatigue to the stage of having to give his job up, after taking LDN he has got it all under control and kept his job. I know this is only one person but surly its a good sign??

I feel people have to open their minds and try new things as if we didn’t we wouldn’t have half the drugs and other things we have to assit us with ms today .

I never want to make people argue, a heathy debate would have done!! I do know that life is to short to spend being negative, relax and explore what the world holds for us all, thaks everyone again Sherbet

[david603]

Yes sorry about that. Since no one else has started a debate on the subject taking over your thread about how to adjust the dose of LDN.

I have started a thread called ‘The Disease Machine’

We will now see who wants to debate the subject in it owns right rather the much more limited topic of off label prescribing of pharmaceuticals like LDN

[Inactive_User]

I haven’t looked at all the threads in this mail however from my own experience any ‘approved’ medicine has knocked me for six, I have been on LDN for six years and have had no side effects, so the approved medicines have major side effects for me but the unapproved doesn’t.

I have PPMS. However went to the Neuro two weeks ago she said it is in your hands what you wish to try to enable you to live with this condition. She also said that it is slowly getting worse and I think it is down to the LDN, because the times I have come of it I can start to see a difference, I know that when i started taking LDN my GP was happy to prescibe but didn’t want any come back and at the time I said it is my decision, one that my husband supported me on. Also my mother-in-law has had to live with disability for over 50 years due to my brother -in-law having cerebal palsy and she has been a great help , she said it is your life and you have to make the choices and sometimes your choices will not be the mainstream approach but if it works for you.