I’d be very scared if I was just diagnosed and I’d read Mhairi’s untrue and biased opinions. The good thing about this forum is the range of experiences and views. There are people who’ve been on beta-interferon since the mid-late 1990s. We’re still alive and haven’t got compromised immune systems. If a DMD works, then you won’t get ‘benefit’ from it. It won’t make you feel better and it can’t repair damage caused by illness, but what it could do is stop you from being constantly ill from relapse after relapse.
The not-so-good thing is that there are posters here with an agenda.
It’s unfair of David603 to keep on asserting that he’s somehow a LDN expert. This is ‘advice’ from someone who has at times made some very bogus ('tends to stop progression by 100%!) claims for LDN and who at the time he joined the boards, was convinced that this board was infested with drug firm representatives. I could leaf through my little black book of some of his finest quotes, but why bother?
MS is complex. It can respond really well to the clinically trialled drugs and also be horrendously resistant to any drug therapy - and that’s just RRMS. The one good thing that’s happened in the last 3 years, is the increase of knowledge of the action of LDN in RRMS and also beta-interferon - and that they aren’t opposites. They can be taken together and that the person with RRMS can benefit and yes, I’ve had a benefit and yes, I’m an advocate. I’m one of the very few people who know how to get LDN in Spain.
I like LDN. It makes me feel better. Yes, you can take beta-interferon and LDN together without bursting into flames or turning orange.
If we just stuck to things that we have personal experience of, then the board would be a nicer place. It would be nice if we could just have a week or so without claims for the efficaciousness of LDN as opposed to other drugs that David603 has no personal experience of. It’s all very well to list links, but as far as I remember, no researcher has ever asked me if Rebif has worked for me or not. It’s been a lifesaver.
I’m tired. I’m very tired of repeating over and over that LDN is not a better drug for RRMS than Tysabri or Campath or beta-interferon. It’s like hitting a brick wall. MS is a terrifying disease. Why on earth should I have to keep countering claims for LDN that no one else who takes it make? I’m not the only one who is scared and I’m not the only one who has come to the end of their patience.
If I was diagnosed with PPMS or SPMS and my neurologist told me that there was no drug on offer to slow things down, then I’d follow the sensible advice here and go and get LDN and try everything I can. Diet, HBOT - bee stings, snake venom, Wheldon Protocol - anything.
I know, it’s stupid to reply to you David. You don’t take anyone else’s opinions seriously or have respect for people who are just trying to live with their MS. So that’s it.