Good grief, has someone been “pushing” ldn then? How scandalous. I prefer to answer specific questions and let people make their own mind up, but guess it’s easy to get poorly informed comments on an open forum.
Oh, and if anyone wants to check my MS type and posting history it’s all on my profile, which is one of the benefits of having a username.
Oh gosh, Anon 2.0, we had not realised that you were only joking about green tea (some people are serious about that).
What a shame the attempt at humour was hidden by your anti-LDN bias … …
Geoff
Hi, I take LDN which I get through the e-med site. In order to get a prescription you have a consultation ( by Skype if you want) and the doctor will take into account any medication you are on before s/he prescribes LDN. I am on Avonex and a shed load of other stuff. Since starting on LDN my energy levels have soared which is a welcome relief to the terrible fatigue I’ve had for years. I was hoping for some relief from neuropathic pain but doesn’t seem to have had any effect on that (yet?). Bladder frequency has greatly improved and I’m catheterising only once a day instead of the previous three times. The spasticity and muscular pain in my left leg has improved to the extent that I’m weaning myself off the Baclofen. I’ve stopped the Amantadine already. I hope you find it works for you too if you decide to try it : ) Pen
Hi, I take LDN which I get through the e-med site. In order to get a prescription you have a consultation ( by Skype if you want) and the doctor will take into account any medication you are on before s/he prescribes LDN. I am on Avonex and a shed load of other stuff. Since starting on LDN my energy levels have soared which is a welcome relief to the terrible fatigue I’ve had for years. I was hoping for some relief from neuropathic pain but doesn’t seem to have had any effect on that (yet?). Bladder frequency has greatly improved and I’m catheterising only once a day instead of the previous three times. The spasticity and muscular pain in my left leg has improved to the extent that I’m weaning myself off the Baclofen. I’ve stopped the Amantadine already. I hope you find it works for you too if you decide to try it : ) Pen
Er didn’t mean to say it twice, lol! : /
Maybe a stupid question my Gp doesn’t want m trying LDN and was looking at emed saying you need dr or cosultant letter confirming. How can I get this if they don’t approve of LDN.
Does your doctor have MS? Does your doctor understand that part of their responsibility is to work with their patients and not just bark orders at them? Ask your doctor why not? And make sure your doctor understands that at best, all of the current crop of DMDs are between 32-37% effective at best at only slowing progression of MS. Not curing it. Not reversing it. I’m not saying LDN does these things either but shouldn’t you be allowed to ‘play the field’ as it were. Shouldn’t you be allowed your own best shot at healing?
They’re maybe away to try me on tysabri so maybe wants to see how it works. X
I am sure I have read that any letter from Neuro/GP stating you have MS is sufficient, so probably worth sending e med a mail to confirm.
Hi re the letter for e-med: I sent a copy of a letter from my consultant from my last review with him. As Whammel says any letter will do they just want some confirmation that you do have MS. It was all done very quickly and I had my meds within 3 days.
Oh and I just took a photo of the letter with my phone and emailed it to them