Hi
If you are on Kesimpta have you been recommended/or are taking any supplements given depleted immune system?
Also my Kesimpta nurse said b-cell depletion is gradual…has anyone else been told this?
Lastly is going to a bar a crazy idea on this drug?
Thanks
I have been told about the slow depletion of B cells on K by nurse today.
I would be interested to know about any supplements when you have more info!
Hi,
I’ve not been advised to take any supplements specifically to do with being immune suppressed/on kesimpta. I do take a high dose of vitamin D.
So far since I started in January I have taken almost no precautions. Just the occasional mask when someone is coughing and I can’t move away and more diligent hand washing.
And I am on my second cold… it does seem to hit me a bit “harder” than might have been the case before, I might be imagining that. But then… everyone gets colds, there’s lots going round right now, it’s hardly a big deal. Being freelance I more or less have to work through it. I just tell myself that all this is worth it for the long term.
I travel regularly (weekly foreign travel, multiple trips), work in confined spaces, join crowds at check-ins and on transport… the lot. Wouldn’t think twice about going to a bar.
It’s really up to you. Would you rather live a very restricted life for the foreseeable future and reduce the risk of colds/flu? Or are you willing to accept a risk that you might get a respiratory infection but you can keep doing the things you like? My reasoning was that before my MS diagnosis, I would never have stayed home for fear of catching a cold. Yes, they may be slightly tougher/more frequent now… but I’m just so determined to live my life. It’s a very personal choice!
If you do go out and get something more than a snuffle, you can also phone your GP, point out you are immune-suppressed and check if they can help. They might just say no, but I was encouraged to do this by the MS nurses when I started Kesimpta.
Thank you for your message. Definitely food for thoughts… so much to think bout and decide.