Just needed to get things off my chest

Hi everyone ive been reading all your posts for quite a few months now but never posted one myself. Im 36 and have been getting all these crazy symptoms for the past seven months now. Numbness, nerve pain, blurry vision, inside tremor, burning like sunburnt, sensitive to hot and cold, stiffness, tight calf muscle, chronic upper back pain aswell as other aches and pains and more. It all seemed to of started a month after my second little boy was born. These past seven months have been hell for me. I count count the number of times ive been to the doctors and being told my symptoms was from having a baby and it will pass ec ect. I also went to A&E Christmas Eve for numbness in my arms they thought i was having a stroke or something and gave me an ECG. It showed an abnormal heart rate so i was then sent in ambulance to another hospital to cardiology where that did tests and ultra sound. Anyway to cut along story short they did find a blockage in my left chamber but its something i could of had for years and because i had no other heart related symptom like chest pain ect they ruled out angina and was happy to discahrge me. I told them about the other symptoms ive been experiencing and doctor just shrugged his shoulders and said perhaps anxiety. Since then to and fro to doctors with more symptoms. Ive had full blood counts three times, thyroid, liver, kidneys, defiencies are all normal. Ive had chest and neck xrays all clear. My doctor was then telling me he thinks its anxiety and post natal depression. Yes i have been very anxious and very low but thats because of my symptoms and worrying about whats wrong with me. I told doctor i think i have something neaurological going on like MS and because he saw what a right mess ive gotton myself into over all this he referred me for MRI fr brain and spine to prove to me theres nothing wrong. Anyway the results came back normal and he thought that by me having normal results would reassure me i dont have MS and put all this behind me and accept its anxiety and post natal depression but i then realised that i only had brain and cervical spine scanned and i dont understand why he didnt have my whole spine scanned and so no it hasnt reassured me at all. Anway he has now referred me to a neauolist and im still waiting for my appointm,ent to come through. Ive not been in a good place lately. I feel so scared and so alone.Dont get me wrong my partner he is brilliant but we have a two year old and an 8 month old boys who are very demanding and take up alot of our time. Each day is a struggle trying to hold it together in front of them when all i feel like doing is breaking down. The rest of my family i feel are not very supportive. They know what ive been going through with the doctors ect and ive broken down three times to them over the past months. My mum dosnt do hugs and dosnt say anything which is reallyt frystating because right now i need her. She just pats me on the back and says ‘i wish i knew what to say but i dont’. Lets hope its nothing serious ey’! I broke down on Easter Sunday to her, my nan and my aunt. Its been three days and only a text from my aunt to ask how i am. My best friend who i have always been a shoulder to cry on this past year after her breakup hasnt really been in touch since shes met someone new. I have never asked for anything and always kept thing to myself but the one time i need people no one is there for me. Im not looking for attention or sympathy. To be honest i dont know what i want but all i know is that i feel so lonely. I feel like im trapped in this bubble, this horrible dream watching everyone going about there business, getting on with life. I feel detached from everybody and myself. I dont feel like me anymore and want my old self back and it might never happen. Im scared of these symptoms and scared of whats more to come. I look at my boys who i love unconditonal and it breaks my heart because i dont know what the future holds.I know ive not been diagnosed yet but every symptom looks like MS. Im sorry if im depresssing anyone. I know alot of you are all in the same boat too and i really feel for you all. I just needed to get this off my chest. Thanks to anyone who have took the time to read this.

Hi everyone i’ve been reading all your posts for quite a few months now but never posted one myself. Im 36 and have been getting all these crazy symptoms for the past seven months now. Numbness and weakness feeling in arms and leg, nerve pain, blurry vision, inside tremor, burning like sunburn, sensitive to hot and cold, stiffness, chronic upper back pain aswell as other aches and pains, prickly sensations and more. It all seemed to of started a month after my second little boy was born. These past seven months have been hell for me. I cant count the number of times i’ve been to the doctors and being told my symptoms was from having a baby and it will pass etc ect. I also went to A E Christmas Eve for numbness in my arms they thought i was having a stroke or something and gave me an ECG. It showed an abnormal heart rate so i was then sent in ambulance to another hospital to cardiology where they did tests and ultrasound. Anyway to cut along story short they did find a blockage in my left chamber but its something i could of had for years and because i had no other heart related symptom like chest pain ect they ruled out angina and was happy to discharge me. I told them about the other symptoms i’ve been experiencing and doctor just shrugged his shoulders and said perhaps anxiety. Since then ive been to and fro to doctors with more symptoms. I’ve had three full blood counts over the past months, thyroid, liver, kidneys, deficiencies are all normal. I’ve had chest and neck xrays all clear. My doctor was then telling me he thinks its anxiety and post natal depression. Yes i have been very anxious and very low but thats because of my symptoms and worrying about what’s wrong with me. I told doctor i think i have something neurological going on like MS and because he saw what a right mess i’ve gotten myself into over all this he referred me for an MRI for brain and spine to prove to me theres nothing wrong. Anyway the results came back normal and he thought that by me having normal results would reassure me i don’t have MS and put all this behind me and accept its anxiety and post natal depression but i then realised that i only had my brain and cervical spine scanned and i don’t understand why he didn’t have my whole spine scanned and so no it hasn’t reassured me at all. Anway he has now referred me to a neurologist and i’m still waiting for my appointment to come through. I’ve not been in a good place lately. I feel so scared and so alone. Don’t get me wrong my partner he is brilliant but we have a two year old and an 8 month old boys who are very demanding and take up a lot of our time. Most days is a struggle trying to hold it together in front of them when all i feel like doing is breaking down. The rest of my family i feel are not very supportive. They know what i’ve been going through with the doctors ect and i’ve broken down three times to them over the past months. My mum doesn’t do hugs and doesn’t say much which is really frustrating because right now i need her. She just pats me on the back and says ‘i wish i knew what to say but i dont’. ‘Lets hope its nothing serious ey’! I broke down on Easter Sunday to her, my nan and my aunt. Its been three days and only a text from my aunt to ask how i am. My best friend who i have always been a shoulder to cry on this past year after her breakup hasn’t really been in touch since she’s met someone new. I have never asked for anything and always kept my problems to myself but the one time i need people no one is there for me. Im not looking for attention or sympathy. To be honest i don’t know what i want but all i know is that i feel so lonely. I feel like i’m trapped in this bubble, this horrible dream watching everyone going about their business, getting on with life. I feel detached from everybody and myself. I dont feel like me anymore and want my old self back and it might never happen. Im scared of these symptoms and scared of what’s more to come. I look at my boys who i love unconditional and it breaks my heart because i don’t know what the future holds. I know i’ve not been diagnosed yet but every symptom mimics Ms. I’m sorry if i’ve depressed anyone. I know alot of you are all in the same boat too and i really feel for you all. I just needed to get this off my chest. Thanks to anyone who have took the time to read this.

I also forgot to mention with symptoms that i have balance and cognitive issues and constant dizziness. Along with the numbness/weakness feeling in my arms and leg (mainly right side) i find these the most distressing. Just felt like i needed to share this also.

Hi,

MS lesions really only occur in the brain and cervical cord. So I think that it is unlikely that your problems are MS. There have been a few people on this board with similar symptoms as you and clear MRIs. They tend to be diagnosed with either fibromyalgia or functional neurological disease (FNS).

I would type functional neurological symptoms into the search engine.

Please try not to worry as this will make the symptoms worse.

Take Care

Moyna

xxxx

Sorry it is functional neurological disorder. (FND)

Moyna

hello, i feel so sorry for you, sounds like you do not have a lot of support at home. i would seriously look up fibromyalgia, as quite a lot of your symptoms seems to fit, especially things like hightened sensitivity to hot and cold, the chronic back pain and cognitive issues. Look it up online, it is quite easy to find a list of symptoms to match to yours, and ask you gp for a referal to the correct specialist. Fibro and ms have quite a few of the same symptoms, i myself have been told by a neurologist that i either have ms or chronic fibro (waiting for mri results now). Even though it is hard, try and fight for the treatment you need. sending you love

j xxx

Hi Moyna and Joryan. Thank you both so much for taking the time to read and reply to my post. I cant believe how much i had written until i saw it again and sorry to anyone if i sound so self pitying when I’m not the only one going through this and there are others that are far worse off than i am. I felt better for reading your replies and Moyna i didn’t know that MS lesions only really occur in the brain or cervical spine. Is it quite uncommon fir lesions to be anywhere else on the spine? I looked up fibromyalgia and there are quite a list of symptoms that do match mine but i still think that they match MS more. Even the sunburnt feeling I’ve read people with MS also have it. Don’t get me wrong i would rather have Fibromyalgia out the two. I looked at the FND website Moyna thank you its really interesting. I guess I’ve just got to keep an open mind that and hope for the best. Joryan have you had your MRI results back yet? I read your post about getting your results back in the post. I had mine sent through post and to be honest i had a feeling it was a good thing as all what ive been through with the Doctor I’m sure he would of told me over the phone if it wasn’t good news and my results were normal. So I’m sure your Doctor would have done the same too.

Hi dont’ give up. I too have been diagnosed with fibromyalgia and yes many of the symptoms are the same. My doctor thinks there is more going on as I am if the diagnosis is correct the worse case she hs ever seen. I am being sent back to see a neurologist as the falls and stumbles I have are too concerning to ignore. A friend of mine many years ago had a lesion in her lower back, not sure how common that is but nevertheless possible. Please try not to worry. I will look out for your update. Lou x

Hi LouLou10 Thanks for your reply. I am doing my best not to worry thanks. I have been a lot better mentally these past few days. Have you had a full spine MRI? Im sorry about your falls and stumbles. It really cant be nice for you i mean i have a feeling that I’m unbalanced and find myself bumping my sides in to door frames as I’m walking through them and I’m dizzy most of the time. Some days are better than others but i find that one of the most distressing symptoms i get and it seems like nothing compared to what your going through so i really do feel for you. Its good that your Doctor has referred you back to Neurologist. Get a second opinion. Have they ruled out everything else that could be causing the balancing issues? Also are there any meds that can help with that? What are your other symptoms you have if you don’t mind me asking?