It is me or is the medical professionals just an utter waste of time. Received another medical report going on about my condition with zero help or support just another follow up in 3 months.
Really feel we are just let down by all fronts without anyone assisting and just left to rot.
I have Secondary Progressive MS and have had complications after complications with it.
Bladder and Bowel issues, memory problems, mental health problems, mobility issues and spasticity problems the list carries on.
They are fine at dishing out the tablets (and do-gooders do nothing advice) but very little more.
I need support and guidance with things and think at all fronts it’s a big waste of time.
Often wondering now if should just take all the medication all at once and just do one (but haven’t got the bottle to do it) then stop taking everything and just let the ruddy disease take over.
Really sick of it all and this battle daily with this condition (and who cares or gives a too no-one)
Sorry to sound bitter but really at my whitts end with it all and no one to turn too,
Morning mswhy, I completely get where you’re coming from, like you I have SPMS and apart from 2 phone calls a year don’t get any help, haven’t seen a neuro in years, but I figure there’s nothing they can do anyway, apart from like you say giving out pills, the only med I take for the MS is Baclofen to ease my stiffness, I do have Botox injections into my bladder and self catheter which does help and do an annul irrigation. I too suffer with memory, haven’t seen anyone about that yet, but I know I’ll have to mention it. Please don’t do anything silly, you’re worth more than that, I just try and get on the best I can, with the help of my amazing hubby. It get’s me more than some people just don’t understand, but we have each pother on here that do. So while ever it’s frustrating chin up and try to keep smiling
Hi MSwhy. Really sorry to hear of your problems. If I may, then can I suggest that if you haven’t already done it: speak to your GP about Mental Health problems and ask what treatment and support you can have. From time to time I pay for some Counselling sessions which do help - in addition to low dose Citalopram.
Also be direct with your MS Nurse - ask what support there is for bladder and bowel problems. If I h a bowel problems then plenty of fruit, prunes, fibre etc helps along with plenty of water. If that doesn’t work then DulcoLax is quite good.
Similarly ask direct questions about support for mobility and spasticity ( although there seems to be UK wide very long waiting times for Physio support).
Finally , are there any MS Groups near you. Sometimes good to meet up, chat and share.
