eight weeks in to relapse now certain parts of my legs feel like they are on fire , i hate this illness wake up ever morning hopeing that it has gone away beginning to get down now nobody understands what it feels like unless you have it yourself such a crule illness as you look fine on the outside will i ever get better refuse to take steriods as like body to heal itself how much longer !
hiya
i recently read on here that steroids only make the relapse 2 weeks shorter! i started an attack in june-it took 2 weeks to reach ‘its peak’ but 7 months later i am still coming to terms with the damage.
one thing that i dont understand-how do folk define the actual relapse and recovery? for example-i could say this started in june and its still going on but theres been loads of damage done this time but would say i have been coping with the aftermath since july but i dunno how others define actual relapse and recovery period (even tho it seems like no recovery-its just VERY slow)
i am with you on letting the body get on with it-its remarkable- if we dont try to confuse it further by trying to ‘help’ it.
so answer to original question-theres is no answer! but a good opportunity for u to practise patience
ellie x
I’m all for no meds however I do feel sometimes there comes a point where they do help. I had a relapse which started in November and my legs got worse till I was really struggling at the beginning of December. It was then I actually realised this was not going to improve and as I have a three year old I could not afford to be struggling when I maybe didn’t need to. I therefore took steroids and this did improve it. She leg still is not what it was however I believe the fact I did not go on steroids when it started playing up now means the damage will take longer to improve and may not completely. However I can now lift my left leg the same height as the right and can do many of the physio exercises and yoga postures that I was also struggling to do. It’s still not what it was but hopefully it’ll get there. I have had three lots of steroids in over two years. Honestly they are horrible to take, don’t make you feel so great emotionally however physically they do seem to work (well for me at the moment). My other two relapses I took them straight away and I was left with no damage after relapse. This time a little different as said. So please if you are really struggling, getting very down speak to the M.S nurses or GP and maybe consider them. They may just improve it then you can try and make some progress maybe. This disease is horrible and changes our life however unfortunately we have to try and get through it and not let it beat us. Hard to think positive at times it really is especially when you see other people that have not a worry in the world (or appear not to) but think of how your feeling now and if these steroids could after taking them improve things is it not worth trying hun? Im not on any medication presently and have been very anti medication, however at my next neuro appoitment I will be discussing DMDs this time as i want the best quality of life possible for my family and myself. Sometimes we have to swallow our pride hun Xxx