So the last 3 or 4 days have been horrendous.
I’m not sure if I’m having a relapse or that I’m coming down with something that might be flaring up my MS symptoms.
Basically I was in work on Monday and felt that my walking was a little worse than usual.
Tuesday & Wednesday was pretty much the same.
Then when I woke up for work Thursday morning, there was a dramatic change in my MS symptoms.
I couldn’t even get a pair of socks on, had to crawl down the stairs, and had to lift my legs into the car.
Tonight I’m literally shuffle along, balance all over the place, absolutely no leg lift and my hands feel completely “muffled”, if that makes sense.
All my usual symptoms but way off the “normal” scale !
Now, heres the thing.
I’m on the simvastatin trial taking 80mg per day of the drug, over the last few months, I’ve been getting a very nasty pain around the right hand side of my chest, just below the rib cage, this pain then radiates around my back just below my right shoulder blade.
This has been happening probably once or twice a month and then settles, so being a fool I’ve ignored it, however over the last week or so I’ve had this almost every night all night, the pain is something I’ve not experienced before.
I’ve also felt over the last few days that I’m coming down with something, a bit like a common cold sort of feeling.
Today though I had no choice but to go to my GP, the pain was horrendous.
Now, the thing is these tablets I take for the trial can apparently effect the liver and gallbladder, but all the monthly blood tests I’ve been having have been clear.
My GP has decided to send me for extra blood tests plus a liver & gallbladder scan.
I’ve rang my MS clinic who said to see how things go over the weekend, with parting comment of “it could be anything see” .
The difficulty is that anything MS related my GP says ring the MS clinic, then when I ring the clinic they say ring the MS research centre because I’m on this trial drug, they then ask have I seen my GP because of the pain , but my point is, maybe the trial drug is causing this aggravation in the gallbladder/liver which in turn is flaring up the MS!!
Its a merry go round…
So I’m wondering can a stomach bug/virus or even a simple common cold flare up the MS to the extent or does it sound like a relapse ?
I’ve never had an obvious relapse, I’ve just slowly progressed to SPMS, so I’m not sure how to separate a real relapse from a flare up due to other factors ?
Any advice appreciated.