I am after some advice, hoping somebody can help as im feeling very confused.
I had a vertigo and coordination issue and was sent by neuro to have MRI (head, c-spine and thoracic with no enhancment)
Results came back and i had a single lesion on my brain -neuro said not MS as only 1 lesion ans MS means there has to be multiple (guess the clue is in the name)
Wanted me to have another head MRI with contrast - by the time this happened was 6 weeks after initial scan. Results came back and lesion had increased ever so slightly and was still enhancing, also was a new lesion enhancing.
He then referred me to ms specialist who i saw 2 weeks later. He was concerned about growth and told me not to worry and go and enjoy life! (WTF!) He consulted the local neuro-oncology multi disiplinary team and came up with a plan of action.
I had a Lumbar pucture and a further MRI of head,c-spine and thorac with GAD. Meanwhile neuro rang to tell me he and the others didn’t think it was a tumour and it is something that is treatable.
Few weeks later met neuro again, 2 original lesions had stopped enhancing, however was a new lesion that was enhancing.I ahd not suffered any further symptoms despite new lesions but he said this was normal as they could be classed as clinically silent? He gave me a confirmed dx of MS. He was reluctant to give me a ‘type’ as he wanted to wait and see before defining it.
My question is does it sound like RRMS/PPMS also does it sound like an aggresive form of MS? I asked him these questions and he was a bit too nonchelant to be re assuring.
Any blanks you can help me fill in i would appreciate, it’s been a long process and i would just like a few more answers.
Sorry for the long post, thank you in advance.