This is my first post. I apologise in advance if I have posted in the incorrect place or way…if so please point me in the right direction.
My story so far…I experienced a few months of pins and needles in my fingertips and eventually went to see my GP. I started a six month period of tests with no conclusion and was advised that I was likely overweight and needed to cut back on alcohol (despite explaining that I was a very occasional drinker). A little frustrated I contacted Bupa for a second opinion. This started more tests including electro to check nerves, MRI etc… Neurologist called me in for results, I expected to be given all clear, but was told there were two lesions (one on brain and one on spinal cord) on MRI. He felt that they looked like they were of different age which would be clear sign of MS but that there is no way to be clear. He said that he was 60-80% sure it would be MS but that if ever there was a time to be diagnosed it was now as research is taking huge steps forward. I was referred to MS specialist back with NHS.
I have now had two annual appointments with the specialist to discuss an MRI that happens six months prior. It was explained that MS is likely but cannot be confirmed until a new attack or lesions are found. I had latest MRI in April.
Today I received a letter from specialist stating that a new small lesion was evident on latest MRI. He states that this “would push us towards a diagnosis of MS” but as I am not presenting with any significant symptoms that he would not advise any treatment. He has advised that we can discuss at our next appointment in November.
Does this mean I have MS?
I still have had zero clear symptoms other than the odd tingling in my fingers (mainly left hand). In the last six months I have lost 25kg and I’m fitter and healthier than I’ve been in years. The letter today is a total shock.
I am going to try contacting them tomorrow to speak to someone in the department.
Is there anything else I should be doing? I have been reading similar stories on the forum and many people talk of having a lumbar puncture to get clarity…is this something I should push for?
Any guidance from those of you with more knowledge or experience than me would be much appreciated