My spinal mri results are back and deep breathe… They can’t use them. Basically it was done in a mobile scanner to ensure there weren’t any “big nasties” (direct quote) and they believe the have found two areas which may be evidence of demyletation but as it was done on a low resolution scanner they couldn’t definitely say and therefore would strongly suggest the scan is redone after covid 19 which would also allow time for progression hopefully. I am really at my wits end. Why do the mri when they know that any lesions/plaques they see can’t be counted due to the resolution? Slept for most of the day and missed my little boy you’re my sunshine. I Hes autistic and only started to speak, I’ve been singing the song to him for the last 4yrs and today he sat singing it and I was asleep. I don’t know if I’m angry or sad.
Hello DK
Angry and sad in equal measures I would guess.
The problem for any of us is that the doctors/radiographers/neurologists understand what they’re talking about and we don’t.
I’ve been told that the resolution value of the MRI isn’t relevant. The difference between a 1.5T or 2T machine isn’t going to give you worse images than a brand spanking new 3T scanner.
The biggest difference isn’t the clarity of the images, it’s the length of time it takes. This in itself doesn’t mean the scan from a 3T machine isn’t better (imagine you move an infinitesimal millimetre?) but it might be the same as the image from an older MRI unit.
The chances are that even if you’d had a higher resolution scanner, the neurologist would still want to rescan in a few months to compare the images. That, I’m afraid, is typical.
Where you’ve been really unlucky though, is the timing. CV19 has wrecked so much, for so many people. And for diagnosis, or of course, ruling out, MS, you’ll need to wait until the NHS has more room in its calendar.
If you can cope with living in limbo, whilst enjoying your little boy, then try your hardest to put the spectre of MS from your mind. Eventually, it will either come back to make you insist on being diagnosed or otherwise.
Best of luck.
Sue