Hello, I am completely new on this formum and am not really sure whats going on other than that I am quite scared at moment. Here's my story so far...
In December 2010 I woke up with a huge red blood spot on my eye. Went to GP who said it could be blood pressure related as was quite high, but to be sure go to opticians for a test so they could see if anything happening behind the eye. At the opticians they gave me field vision test which had to be repeated 3 times because the results were not normal. After the third attempt she said that she wanted me to have an urgent refferal to a neurologist because the the field vision showed that there could be a problem 'deeper'. Off i trots back to GP to hand in referral letter and in early january I had an appoint with a neurologist in Sheffield.
At the first appointment I was seen by the neurologists registrar - who I might add made me feel like I had totally wasted his time as he said that his preliminary tests did not reflect the results on the charts the optician had sent. After he asked if I had ever had any problems before, assuming he just meant relating to the eye, I mentioned that 10 or so years ago I had an extremely painful episode of optic neuritis so he went to chat with my consultant. The consultant came into the room and said that because I had had this in the past he would send me for a brain scan and perhaps run their own field vision tests. (One in the face for the registrar he he). Anyway 1 month later I had the MRI with contrast and a bit later an evoked potentials test. I waited and waited for the result appointment to come through but nothing so I rang the department who said that the consultant was a bit behind and that they would probably write to the GP with results. As time went on, I naively thought that no news was good news. A year passed and in January 2012 I received a letter asking me to go and see the consultant - i thought ok, perhaps they are going to sign me off as everything was okay.
When i got there he looked at my notes and said I was supposed to see hime after 8 weeks...I replied that I never received a letter and that I had telephined the department. he went on to look at the report from the mri and said '...hmmm I can see that the mri found some 'abnormalities' which coinsided with the optic neuritis I had in the past'...but to be sure he wanted me to have a lumbar puncture and a field vision test at the hospital. he then apologised for the wait (ha! ONE YEAR!!!!!!) and he would see me in three months after the tests had been done. So I've recently had both of those tests and am waiting patiently for 5 weeks to pass when I will constantly ringt he secretary to chase up an appointment.
Until Friday, I had no idea that all these tests related to a potential MS diagnosis until I chatted to my GP about severe IBS and Reflux I am suffering with. he asked if I was particularly stressed at the moment because the 'suddenness' of these two conditions was strange 'for me'. I explained that i had just a lumbar puncture last Monday and perhaps it was that? He then wanted to know why so I told him the whole story. He then said that he was 95% sure that they are testing for MS as the optic neuritis was a classic sympton and because another possible related event had happened years later then this would fit a pattern. I then said well could the refux and IBS be related, in addition to the dizzy/vertigo spells I have had been to see them about in the past, the tennis elbow and foot pain last year...he just ummmmed and said well yes possibly but that I really need to get these result from the hospital first.
I had not told the conultant at the hospital about these previous medical issues as at the time I thought he was just relating the question 'any problems?' to my eyes.
After leaving the GP on Friday my head has been a shed..I hyperventilated on the way back to work and have been really teary.
So here I am crying at my computer not knowing who to talk to, probably over thinking things and terrified of my results in five weeks - also quite annoyed that the hospital made me wait a year for the next stage - all this couild have been sorted out a year ago.
Can anyone relate to this - should I be feeling like this or has my GP just put the frightners when it could be nothing and not related to MS? Thanks for listening