So where to begin…
My wife has been having ongoing medical issue for the past 2 and a half years, we have seen all sorts of consultants all across the country but most of the investigation has been around her bladder and we have been seeing a good urologist. We were told that MS can effect the bladder and an MRI of the spine and head may be worth doing, in all honesty after so many tests and scan but no answers we didn’t expect anything to come of it. We went to the follow up appointment on Saturday to be told that she has around 5 or 6 lesions on her brain that points towards MS, we have not had this confirmed yet by a neurologist but the GP also agrees it looks quite possible, my gut feeling is that both are confident that it is MS but do not want to say for sure? As with other posts I have seen, clearly it has came as a massive shock to us, my question at the moment which in all honesty I don’t think actually has an answer but I have to ask anyway, how do we all cope with the news?
My wife is 34 and we have two children who are 2 and half and 6 years old. I am as the husband and the dad should be the glue, the one who holds it all together, the rock, the one with all the answers but I don’t and am not sure if or how to find them, I think it is one of the situations where the only thing to help may be be time, time and answers from the experts? As it is we have no diagnosis although I think we both know what we are expecting to hear, obviously the children do not know and even if they did they wouldn’t understand but it is how I help my wife. None of what I am writing is anything I wouldn’t expect from someone getting this news but it is how I help her move forward, currently she is quite angry at the world, quite withdrawn and emotional. As with anything she spends quite a bit if time researching and trying to find friends of friends that are experiencing and living with MS but that in it’s self brings very mixed results with good stories and bad stories, good information and bad but she has such a thirst at the moment as I am sure most people newly diagnosed with MS do for information.
As I said before I think from what I have read the main issue with MS is the uncertainty of it all, how will it effect you, your life, the people around you. How will it develop and effect you, will the drugs help the symptoms, when will the cure be found… The truth I think to nearly every question, every statement is pretty much the same, no one knows not even the best neurologists in the world.
So all this being said I think my question I have answered myself, the answer is what will help is time, hope and support, that is what I have to help and I will use them as well as I can.
Assuming you have ready through all of my waffle then thank you and any advice you may have to offer would be greatly appreciated.