Forum

I'm having loads of tests carried out

Hi Guys

I’ve got numbness and weakness in my legs. It could be linked to my Diabetes Type 2. In October last year my D3 blood test showed it at 22. Which is very low. My Neurologist has stated the following; any thoughts?

‘The nerve conduction study and EMG showed no abnormality. The MRI brain scan demonstrated some high signal T2 abnormality in the white matter of both hemispheres. Some of these are around the corpus callosum as well as inside the corpus callosum. The overall radiological picture raised the possibility of demyelination. Although the cervical spine has not been directly imaged, there is also suggestion of inflammation at that level.’

Many thanks in advance.

hi anonymous demyelination is one of the keys to diagnosing a neurological disease. it may or may not be ms. best to keep an open mind as yet. D3 is a key vitamin. my ms specialist gave a speech about it a few years ago. are you taking a supplement for it? the ones available on prescription are a lowish dose and huge (look like suppositories!), i got some soft gel ones from amazon. have you been given a follow up appointment?

Thank you catwomanCarole58 for responding.

Yes, very early - keep an open mind, the consultant stated that in the rest of his letter.

D3 is a key vitamin. my ms specialist gave a speech about it a few years ago. are you taking a supplement for it?

As it was so low (probably been like that for a long time); The doctor prescribed a low dosage of D3 tabs 80; then I had a blood test; which showed 22; very low. So I was prescribed 22,000; take one tab each week over 3 months. Last blood test showed it was 90; much better. Now I’m taking 80 each day.

the ones available on prescription are a lowish dose and huge (look like suppositories!),

Noooooooooo, the ones prescribed are very small; they must of prescribed US tabs for you; I ordered some Vits from the US; they were huge; had to borrow a JCB to lift the container.

i got some soft gel ones from amazon. have you been given a follow up appointment?

I’ve got an appointment mid October to see the consultant; before that I’ve got Visual Evoked Potentials and Somatosensory Evoked Potentials in 9 days time.

The consultant arranged a couple of courses of steroid treatment.

I’ve ordered some tabs which I believe might help me. Should arrive in the next few days.

good

i hope they make a world of difference.

carole x

Thank you; I’ll report back if they do help. You can get it from fruit and veg; but not the concentrated levels to hopefully make a difference.