I wonder what everyone’s views on this are.
I was dxd with RRMS in January 2015. Told that I 've probably had it since 1997. Now confirmed SPMS so a steady but slight and perceptible gradual deterioration.
So what actually ‘starts’ the MS off in the first place, in your view? I realise that this is pretty much a ‘how long is a piece of string’ sort of question though. In my case I was on a family holiday in Cyprus in August 1997; came back and had three months of aching all over and absolute exhaustion. I saw a consultant rheumatologist who said that I had fibromyalgia (which I hadn’t heard of at the time. Then it just sort of ‘went away’ until October 2014 when I saw a GP about falls and weird dropping of things I was holding. And finally the dx of RRMS.
For me one of my worst symptoms is fatigue, which will come on in a wave and very suddenly. I can usually deal with this by having a half-hour rest (lying down ideally then I usually drop off!) My son and his girlfriend have moved in together this weekend and I was thinking how much less I’m able to do these days (physically) to help, compared with say, 10 years ago? And I do resent that.
So not so much a ‘why me’ question but a 'why does it happen in the first place? one. I know the usual answers about causes for MS but what were your experiences?
Happy Easter to all.