Hi Jean, I didn’t know it could happen with the cold too.
When I am hot, or done too much, or have an infection - then my legs tingle more, I can walk less far, my body is weak and feels like melted wax!!! I am not sure that makes sense, but that’s how it feels. I then lay flat and rest.
I am so lucky that I never feel pain so far, unlike you and many others!
@alison100 alison100 Thanks, this interesting annd I didn’t know this.
What I had heard is that they don’t do spinal scans as often as brain scans because it is more difficult to see the lesions clearly on a spinal scan. (?)
Hi @ milojka, Yes mine sadly is affected by both, at this time of year, even with the milder conditions my legs are so stiff and painful, I’m never free of pain from one degree to another, my body is either red hot, feel like I’ve been scalded, or freezing cold. especially my legs, it’s like this morning, I’m sat here in my pj’s, dressing gown on, sock, boot slippers and my legs are like blocks of ice, the heating’s even on, in the summer when it’s warm it’s similar, but I get more of the scalding feeling then, so no win situation, it’s a ball ache, but I just do the best I can, like we all do.
I do take Baclofen for the stiffness and spasms, but there’s nothing for the pain or the fatigue, I was on Gabepentin for the pain, I took it for years, but sadly it stopped having the right affect, I did try Pregabelin made me feel so down and depressed, no thank you. I limited the Baclofen and this can cause sleepiness.
Hey we’ve all something going on, that’s the life of an MS’er.
Take care and keep smiling.
Jean x
Brilliant news. I do like to hear about a solution to problem and you have just come up with a cracker there. Getting you out there again is what really matters and how you do it, not so much.
The trike was only a possible option and it’s what suits you best that counts.
If you don’t mind sharing, it would be nice to see a photo of the view, just so we know what we are missing.