Glad you got on well with management and that they are going to work with Occy Health to make any necessary adjustments for you before you return to work.
I saw my GP today and he has signed me off another 8 weeks, to allow me to get started and settled on my Copaxone and get over my current relapse more as my recent MRI scan showed more active lesions 
…The coffee and chocolate with have helped for sure…I opted for tea and a chelsea bun !
Jools
X
I decided to contact work as they had not contacted me. My ward manager was unaware that I had not had follow up from HR. So he is chasing that for me. I’ve also suggested a little more time before I go back so that we can move house in peace. Which will hopefully also help the situation as I will not be having to go up so many stairs, I won’t have to try and make it 30 steps down the garden and I mean down to hang out the washing, and I will not be starting in my rough week, the week before I have my Tysabri infusion.
Hi, that’s me been at docs another 3 weeks for me then definitely back to work.
Xx
Hi guys, injection number 3 not too bad, it only took me till midday to feel human again. I am going back to work at the end of the month. 10-2 for two days. Xx
Hi, sounds like injections going well, great!
How are you feeling otherwise…with back to work time approaching?
Hi jools I am feeling okay for now. I think easing myself back to work will be good. Our ward manager is still pretty new to the ward and I believe she has made a few changes, so at least it will give me time to adjust.
Xx
If you have MS - Try to steer clear of Heat & FATIGUE, other than that there is NO argument with MS - it wins ALWAYS!
My one piece of ‘advise’ would be to pay attention to others with ‘MS’ and decide whether it is important or not. But what am I telling you for? you will know better than me? It took me a while (years) to ‘admit to myself that I had MS’ - the funny thing is that I tell people that I have ‘MS’ and they tend to show that they are sorry - but generally, it doesn’t hurt! In fact when you are idle, you forget that you have it. There is no diagnosis for MS and nobody knows fully about it - but what am I telling you for? You will probably know more about it than me?
http://www.getfitglobal.com/2011/11/exercises-for-flat-stomach-3-simple.html
Hi, I too am a nurse and just been diagnosed, I haven’t taken any time off work for fear of reprocussions. My sister is currently end stage breast cancer and so I will also need to take time for when she is no longer with us. Petal64 - Lesley… I work for barts health, do you? I haven’t said anything because I am afraid they will find a way to get rid of me because of the merger! Do you think it’s an occupational hazard, become a nurse and risk getting MS! feel free to pm! Tre x
Hi guys, just checking in to let you know that the side effects of the drugs are starting to wear off after each one, thank god. any ideas of when I will start to feel better. xx
Nice on the injections getting better! Ideas on when feeling better? How long is a piece of string? Lol!
I have managed the ability to be quite supple (?sp) in the waist and can twist to do my copaxone injections both sides on lower waist This at least gives another two injection sites that I can give myself. Oh, the joys of amusement as a children’s nurse!!
Well that’s me administered my first Copaxone injection this morning!
It was fine, in my belly, pretty stingy but it passed.
Jools X
Jools,.so pleased that the jags are going well, thats me been on Avonex for 6 weeks now, if i am honest i dont feel any different. I went back to work yesterday, just for a couple of hours, it went ok, back in again tomorrow 12-2.
Hopeal is well . X
What is it about us nurses and M.S?
I was, until March of this year, a staff nurse on a neuro-rehab ward, having being diagnosed with PPMS in 2009. Occ. Health were informed soon after, and were extremely supportive, liasing with my manager to make adjustments (hours/responsibities etc.etc.). At first I was determined to stay working - it was NOT going to change my life, but as my mobility/memory/fatigue worsened, they, H.R. and my manager supported me through the medical retirement procedure, making it relatively stress free and ensuring that financially I was able to cope.
Things have changed, but so have I. Psychologically, I am stonger now (I think). I don’t feel guilty anymore for not being at work, and I don’t feel ‘bad’ for saying no if I know I am unable to do things. Yes, it does shake your system up, (and that of those close to you) but it is the time to start thinking of, and being kind to yourself, as you have no doubt been for your patients.
I hope all is, and will be okay for you. x
Hi,
Yes us nurses and MS :-S
I would guess with your Avonex it’s going to take more than 6 weeks to show any difference, but someone on Avonex will be able to say more. Back at work eh!? don’t over do it and ease yourself in.
Copaxone I was told can take 6 to 9 months to build up in my system! but that that is not like a lightswitch being put on at that stage, but that there will be a gradual build up as the month pass. I’m only on Day 4 at the mo!!
I did have a wee hickup last night when I had a mild reaction about an hour after doing my jag, with hives on my face, shoulders and chest and itching. Putting my nurses hat on, I checked my BP, temp and pulse and noted that I was feeling well and my breathing was fine, so took an antihistamine and went to bed and no further effects this morning. On my MS nurses advice, I took an antihistamine an hour/half before todays injection and did this mid afternoon, so it would be easier to follow up any reaction while my GP surgery was still open.
Fortunatley I have been absolutley fine after todays injection, but have to continue with an antihistamine before injections for the next week or so to allow my system to get used to the med
JoolsX
Rozanna, of all us nurses on here, you are better informed than the rest of us! I am just coming to the end of a relapse but as the previous ones were before treatment and diagnosis, have nothing to compare it to!
Like everyone, you have good days and bad days.
I still think it would be good to have a meet up, maybe at MS Life next year?
Hi all, just checking in, work is ok I am working for 4 hours for 2 days each week, although it will increase the week after next. My manager is great. Its good to be back, and i am so glad that not to be doing 12.5 hr shifts.
X
Well I am no longer a blood donor, my name has been removed from the register, all because I have MS.
Kinda makes me want to scream…
Glad to hear your doing well. It frustrating when things change for us because of MS like not being able to donate blood and only having a three year license that was the hardest thing for me to accept. I never went back up to my 30hrs at work I just decided 22.5 was plenty. I only do 9-5 though not like you on a busy ward. To be honest I probably could do 30 hrs without any difficulty but I wanted to spend a bit more time with the children now when I am feeling well in case the time ever comes when I cant do as much. Glad to hear all is well.
Take care
Missy xx
hi everyone, am a nurse too and was diagnosed with RRMS in february. first symyoms 20 yrs ago. my biggest problen is fatigue. work 2ohrs per week in pre-assess and by 2pm have had it!!. on rebif until tonight as ast up too 69!! only been on it 5 weeks , MS nurse said too stop and review with neurologist…any ideas what to do next ?.was just beginning to feel a .bit better. Anne.