Hi, George,
Thanks for that info. First thing that comes to my mind is why are there so many women more than men who have MS? - Interesting theory though. I don’t care who finds a cure for MS - it can be man or woman, as far as I’m concerned? Hope you are having a nice day.
Marcus.
Hi, George,
I have blonde hair and blue eyes and MS. What about all the people who have MS and don’t have blonde hair or blue eyes?
Marcus.
Lets all suppose there are many ways to get MS. After all MS affects everyone differently so therefore the way you get it might be different.
George
Getting back to Mo Jo500 I hope you are feeling better today.
You said it was a new dx ,how are you feeling about it now and how long have you had a sicknote for?
Pip
Hi Pip, I have been off for week and a half, not long I know. I feel a bit better, I think. I spent some time with an ex workmate yesterday, she has MS also. Its so good to talk to someone who knows how I am feeling. Her advice , stop hating everyone and take one day at a time.
x
mo-jo500 im also a nurse. diagnosed in 2009 (just after qualifying.) i am currently off sick due to my hand going numb and im unable to write/hold a pen. 
i work 12.5 hr shifts and it is tiring! starting Copaxzone soon and may need steroids too
been off sick 3weeks now. work on the neonatal unit, so veryy demanding! miss it soo much. but i have a son 20months, who is a handful! love it all though!
been feeling soo down, tired, dunno wat to say
Hi I was a ward sister when diagnosed with MS last year . Had one day off after being told and not had a day sick since. I had trouble working as my hands were numb so I couldn’t write properly and I couldn’t do finer things such as getting pts dressed because of the buttons or opening up medicine bottles. Drug rounds were a nightmare and they put me as the discharge co ordinator on my ward to start with. I was fortunate because my job was split between ward sister and nurse specialist. I had the usual occ health assessment and it was deemed that I could not work effectively as a ward sister. My job was transferred over to full time upper GI nurse specialist. This did take nearly a yr to sort as my hospital was in the process of merging. I make the most of the people I have around me and can access neurology any time. Everyone knows I have MS. I have very few symptoms other than the permanent numbness and I usually get bone pain about 6 hrs after the avonex inj . I make sure i don’t see pts around that time and stay in the office. I do have good support and my job keeps me level headed most of the time. you have to remind yourself that the odd twinges that you feel are not relapses but wear and tear through yrs of being a nurse. Can I just ask who diagnosed the MS if your not seeing neuro till next month Take care Lesley
Hi guys all your comments have made me feel better, I ahvean appointment on 27th with MS consultant so just have to wait and see what happens next. x
My typing is shocking today, I meant I have an appointment on the 27th.
x
Hay sweetie I was in your postion 8 years ago and I think I only am less scared of the label ms now. I am a nurse and I work 5 nights a week 4 overnight in the community. You have to find a way of working that suits you. I find nights easier at the moment due to having a 2 1/2 year old daughter to take care of.I find things better now I have settled on weekly injections of avonax. I had a bit of a bumpy ride with other dmds and pregnancy but things have settled down nicely.
I didn’t have a great manager when I was diagnosed and I had to leave but moving to the community district nursing team was a good move for me.
Dear ‘Deb’,
And eveyone else who has written in - you may be ‘nurses’ but first of all, you are ‘human-beings!’. It is ‘a god-send’ to have people who are knowledgeable about the ‘human’ condition. I have had ‘MS’ for over 13 years! (Don’t tell the wife - ha,ha - but I used to go out with a nurse who at the time did p/t work at Ninewells hospital in Dundee when qualifying from (at the time, college - now a university) and she ‘looked after me really well!’ - I am aware of all the ‘pluses and minuses’ of being a nurse. First and foremost you have MS! - YOU ARE IN CONTROL! - I’ve had to give up ‘driving’ although I was brought up in the MOTOR TRADE and I became a Director of the 4 garages with responsibility for over 140 people - As ‘nurses’ remember that you have responsibility for your ‘patients’ - I know that you know this but (and in no way is it selfish!) - YOU COME FIRST - YOUR HEALTH COMES FIRST! - If you feel tired DON’T PUSH IT - STOP EVERYTHING AND RELAX - YOU’RE LIFE IS MOST IMPORTANT (WHEN ‘THEY’ FIND A CURE FOR THIS ‘DESPICABLE’ DISEASE THEN GO BACK TO ‘NURSING’ IF YOU DECIDE TO ‘GIVE IT UP’ BUT DON’T LISTEN TO ME - YOU ARE IN CONTROL! WHICH YOU KNOW ALREADY!
Best wishes,
Marcus. x.
Yes, check your life insurance for critical illness. Unfortunately, because I was being tested for MS at the time of applying for our life insurance, I was unable to get the same insurance as my husband, whereby our mortgage would have been paid off with a diagnosis of MS.
Hi, I’m back again. I’d been ‘thinking’ about ‘Nurses with MS’ and I typed it into ‘Google’ and got -
http://allnurses.com/nurses-with-disabilities/nurses-multiple-sclerosis-17903-page2.html
and -
Jul 2, '10 by Jules A
There is a long thread on the disability section here where nurses with MS have written, check it out.
It’s not really my ‘business’ but after 13+ years of MS, I’m curious about nurses getting it? - My Doctor, by admission, doesn’t even know what MS is and says that even he is a ‘possible candidate’ for MS! Why are there so many nurses with MS? - the ‘researchers’ may have looked into this - but is there an answer?
Marcus. x.
Hi guys, on Friday, I was told that I meet the criteria for DMD, now what one to pick. Avonex, Rebif or Capaxone. kinda leaning towards the Avonex injection. Any experiences would be much appreciated.
Thinking of going back to work in a couple of weeks. aaaaaaargh.
x
Hi mo jo - my experience is 22 rebif with a rebismart. would like to be on 44 but neuro not playing. Inject 3 times weekly. Stings a bit but nothing major. I am lucky as no side effects and no injection site marks. Rebif is delivered by bupa to my GP practice. used to be monthly now three monthly. You can get it delivered to yourself if someone to sign for. Needs to be stored in the fridge. But can be kept out for a week I believe. Travel ok no problems through security with GP letter. Hope this helps Good luck with your decision Hugs Min xx
Hi there,
I’m a nurse too and currently off sick and also now meeting the criteria for DMD.
I saw my consultant yesterday and I’m starting on Copaxone, just waiting for my MS nurse to get in touch with me so I can get started.
My sickline ends this Friday, so I would guess my GP wil be signing me off a bit longer.
X
Hi Mojo I chose the avonex as I felt a weekly injection would be less disruptive. I have just collected my second 3 month supply today and honestly its not too bad. At the start I felt rotten for 48hrs but now as long as I take paracetamol and ibuprofen things are fine.Take your time going back to work, ultimately it is your decision but I stayed off till I was settled on treatment.
I returned to work last week on a phased return and I am not doing any more than 20hrs for 6wks. So far so good management are being reaaly good about everything and have told me I will get all the help I need.
Hope all works out OK for you.
Be good to yourself. xx
Missy
Hi ‘Mo-Jo’.
I just read ‘some of your messages’ out of interest. I really wish that I had that sort of ‘support’ when I was ‘first diagnosed’ 13+ years ago. It wouldn’t have made any ‘physical’ difference - but psychologically, it would ‘have made things alot easier!’ (at least that is what I think now). I wonder if ‘stress and anxiety’ can be a ‘cause of MS?’. I don’t know (and stress and anxiety can be blamed for many things - as you will already know!) - I’ll stop now ('cos I’m ‘rambling’ to a nurse who knows more than me!) - but ‘group therapy’ will not ‘change anything, - but it does help?’ What am I telling you for - YOU KNOW THAT ALREADY!!!
Stay cool,
Marcus. x.
Hey guys,
Well I have made up my mind, and I am going for the Avonex injection, phoned the nurse and the prescription will be generated and then it will be all systems go. Occ health tomorrow to see whats going to happen about my shifts at work.
xx